I have been in education for thirty-six years, first as a student and now a teacher entering her seventeenth year in the classroom. Over the years, there have been hundreds of lessons that I’ve either learned or taught about living with spinal muscular atrophy and using a wheelchair. But there are four in particular that stick . . .
A bright light in our community has been extinguished. Ray Spooner — beloved husband, father, grandfather, son, brother, nurse midwife and cyclist — died yesterday, August 8, 2016, of ALS. Ray was diagnosed in 2014, just months after participating in the inaugural Ice Bucket Challenge, and in 2015 set off to cross an item off . . .
Paul Robertson can tell you how falling down can change the course of your life, twice—for worse and for better. For many years, he experienced a series of trips and stumbles, small difficulties getting around and a propensity to catch his feet and toes. His sister Nicole, 11 years younger, had similar tendencies. Maybe they . . .
At the age of 2, Lorraine Woodward was diagnosed with limb-girdle muscular dystrophy (LGMD), and doctors told her parents that she would not live past 16 years old. Now, at age 54, she has more than outlived those early predictions and made a successful life as a wife, mother, volunteer and entrepreneur. From an early age Lorraine . . .
Doctor after doctor told Tira Ingersoll Foster that she wasn’t going to be able to have children. She proved them wrong, three times over. Tira with her husband Jimmy Born with a rare type of congenital myopathy, Tira is now mom to three healthy children: 5-year-old Tacari, 10-year-old Jaiden and 14-year-old Nylah. “I motivated myself and . . .
Earlier this Spring, I had the honor of taking part in the 3rd annual Strength, Science and Stories of Inspiration event at the Harvard Science Center in Cambridge, Massachusetts. As a patient with dysferlinopathy (a form of muscular dystrophy), I was heartened to see every seat in the 500-person auditorium filled to support the mission of finding . . .
Once you open up to the idea that there just might still be some good in the world, and in your life, you begin to see it. It may seem small and insignificant, at least at first. But if it’s good, notice it. Acknowledge it. Give thanks for it. ~Patty Blake We’d like to take . . .
Editor’s note: Ray Spooner, a certified nurse midwife, who has ushered thousands of babies into the world, was diagnosed with ALS just a few months after dousing himself in the Ice Bucket Challenge of Summer 2014. An avid cyclist and fitness enthusiast, Ray knew he had little time before his physical capabilities would be taken from him. Shortly . . .
Kevin Clay is going to the Super Bowl. A Carolina Panthers superfan, he will be in California this weekend to cheer on his beloved team. The opportunity to see the big game in person is, as Kevin says, “a dream come true.” But the trip to Levi’s Stadium in Santa Clara, Calif., is particularly meaningful . . .