With a robust therapy development pipeline and more potential treatments moving forward, MDA believes it is critical that the national programs that support newborn screening efforts in every state have the necessary funding to help ensure all babies have access to life-changing and life-saving therapies.
Health Care Reform Must Be a Bipartisan Effort, MDA and 14 other nonpartisan groups warn
This week, MDA joined with nine other patient advocacy organizations – including American Cancer Society Cancer Action Network, Cystic Fibrosis Foundation, March of Dimes and National Organization for Rare Disorders – to respond to the Senate’s newly-released draft of the Better Care Reconciliation Act (BCRA).
The U.S. Senate introduced its health care reform bill that sets out changes to modify health care coverage of people across the country, including MDA families.
At the end of 2016 we asked the MDA community about their experiences with air travel. We received more than 2,000 responses. This is what we found.
MDA remains committed to sharing with Congress and the Administration the many reasons why increased funding is critical to developing therapies for neuromuscular disease.
Today the House passed the AHCA, which contains provisions that will impact the health care coverage of individuals and families that MDA serves.
A delegation of dozens of MDA advocates from 23 states visited more than 100 congressional offices on Capitol Hill earlier this week to speak to their representatives about the importance of programs and policies that help accelerate the development of treatments and cures for individuals and families living with muscular dystrophy, ALS and related neuromuscular diseases.
Researchers from leading institutions around the country and MDA are visiting Capitol Hill to urge Congress to enact sustained and robust funding increases for the National Institutes of Health (NIH).
As policy makers are considering various options to modify or replace the Affordable Care Act (ACA), MDA is working to ensure that individuals and families affected by chronic, serious and life-threatening diseases maintain health care access and coverage.
