Recommendation for SMA to be added to RUSP is announced

Today, the Advisory Committee on Heritable Disorders in Newborns and Children voted to recommend to the Secretary of Health and Human Services that spinal muscular atrophy (SMA) be added to the Recommended Uniform Screening Panel (RUSP), the national list that guides states on which diseases should be tested for at birth. Newborn screening is essential . . .

Read More

Help protect Medical Research at the Department of Defense

Biomedical Research

The Senate will soon begin consideration of the S. 1519, National Defense Authorization Act (NDAA), which includes provisions that severely restrict, and in some cases terminate, critical medical research.  Please join us in taking action and urging your Senators to support the bipartisan amendment to the National Defense Authorization Act that will ensure funding for biomedical research continues.

Read More

Join Us for an Accessible Air Travel Webinar with Southwest and Alaska Airlines

Join MDA and representatives from Southwest and Alaska Airlines on Thursday, Aug. 10 at 3 p.m. EDT for an informative conversation about accessible air travel. This webinar is a continuation of MDA’s collaborative accessible air travel efforts as we team up with representatives from the airline industry to discuss traveling with a disability and as we explore ways to help eliminate barriers to access.

Read More