At the age of 2, Lorraine Woodward was diagnosed with limb-girdle muscular dystrophy (LGMD), and doctors told her parents that she would not live past 16 years old. Now, at age 54, she has more than outlived those early predictions and made a successful life as a wife, mother, volunteer and entrepreneur. From an early age Lorraine . . .
Doctor after doctor told Tira Ingersoll Foster that she wasn’t going to be able to have children. She proved them wrong, three times over. Tira with her husband Jimmy Born with a rare type of congenital myopathy, Tira is now mom to three healthy children: 5-year-old Tacari, 10-year-old Jaiden and 14-year-old Nylah. “I motivated myself and . . .
Halloween is a night when kids can be whatever they want to be. They can dress as ghosts, cowboys, astronauts, monsters — the sky’s the limit. That’s exactly what Ryan Wiemer tells the kids he works with. The sky’s the limit. His non-profit, called Magic Wheelchair, helps kids live unlimited by designing and building special costumes. But . . .
Editor’s note: The following is adapted from a letter Stephanie Hoover wrote to family and friends to ask them to support her in the Louisville Muscle Walk. We thought her characterization of the impact of her disease and her eloquent description of the community she has found within MDA were worth sharing. We hope you agree. . . .
“For us, living unlimited is an every day thing….” X Ambassadors. From June 20 to July 31, a generous partner will give $1 to the Muscular Dystrophy Association for every #LiveUnlimited moment shared. Create your own #LiveUnlimited moment
This summer, as MDA and our families defy daily challenges together to live unlimited, we’re having a little fun. And on June 24, we’re having a whole lot of it. We’re teaming up with two of Legendary Digital Networks’ top Internet channels – Geek & Sundry, founded by actress Felicia Day, and Smart Girls, founded by Amy Poehler . . .
Brayden Hometown: Fairdale, KY Age: 8 Diagnosis: Charcot-Marie Tooth (CMT) Favorite School Subject/Activities: I enjoy Math, GymTyme Cheer, and being in the spotlight. Favorite People and/or Pets: I like Spiderman, Batman, The Flash, and The Arrow. Other people I really like are my mom, dad and brothers, Dylan and Nate. I have two dogs and two cats. Interests: I love . . .
MDA Amplify is a new mobile app that revolutionizes the way you — an MDA supporter, partner or family — can share MDA news on your own social media channels. To become an MDA Amplifier, download the MDA Amplify app from iTunes or Google Play store (it’s free!), connect your personal social media accounts, and . . .
Editor’s note: Ray Spooner, a certified nurse midwife, who has ushered thousands of babies into the world, was diagnosed with ALS just a few months after dousing himself in the Ice Bucket Challenge of Summer 2014. An avid cyclist and fitness enthusiast, Ray knew he had little time before his physical capabilities would be taken from him. Shortly . . .
Hailey Hometown: Bismarck, ND Age: 16 Diagnosis: In 2001, I was diagnosed with Spinal Muscular Atrophy (SMA) Type 2. I was just 2 years old. SMA is a genetic disease affecting the part of the nervous system that controls voluntary muscle movement. Favorite School Subject/Activities: When I am in school, I like English & Biology class the . . .
