Editor’s note: The following is adapted from a letter Stephanie Hoover wrote to family and friends to ask them to support her in the Louisville Muscle Walk. We thought her characterization of the impact of her disease and her eloquent description of the community she has found within MDA were worth sharing. We hope you . . .
Although I would later come to associate MDA Summer Camp with the words joy, freedom and independence, that’s not how I felt in the beginning. In fact, I was terrified to go. When my mom told me she had signed me up for MDA’s summer camp in Empire, Colorado, I threw a massive temper tantrum . . .
For more than 35 years, ERA Real Estate has been committed to enriching the lives of children and adults living with Muscular Dystrophy and other neuromuscular diseases through its support of MDA. In particular, the ERA network has been helping kids living with muscular dystrophy, SMA and related muscle-debilitating diseases have “the best week of the . . .
For the past seven months, I have been working at the Muscular Dystrophy Association’s National office in Chicago. This is my first job since graduating from college (I attended Illinois State University and graduated with a degree in broadcast journalism in May 2015), and it truly has been an eye opener. For starters, the people . . .
Barrier-free, weeklong camp for kids with neuromuscular disease offers ‘Awesome Adventures’ CHICAGO, May 20, 2015 – The Muscular Dystrophy Association (MDA) is set to kick off another season of summer camp. Now in its 60th year, MDA summer camp supports families by hosting thousands of kids fighting muscular dystrophy and other life-threatening diseases that severely . . .