Dear Grandpa, I have been thinking about you a lot lately. I miss you. You died a few months before my 20th birthday. Two-thirds of my life here on earth has been without you. So many of the people I love never knew you. Actually, though, I only knew the last 20 years of your . . .
My ALS progression may be slow and the changes I notice may be quite small at this time, but they’re there. Subtle or not, I am aware of the changes. A small change that makes me sad is losing what remained of my speech. I keep trying. But it’s really gone. I miss it most . . .
The other day a friend complimented me on my positive attitude and asked how I managed to “find the funny” in everyday things. My reply? “I don’t go looking for it — it finds me! To help you understand, I’ll share a couple of stories from some of my past medical visits to the ALS Clinic. . . .