Meet Grace, MDA’s 2016 State Goodwill Ambassador from Delaware


Grace DE

Hometown: Middletown, Delaware

Age: 15

Diagnosis: I was diagnosed with myotonia congenita in 2006 at the MDA Clinic at A.I.duPont Hospital. Myotonia congenita is an inherited myopathy, a disease that causes problems with the tone and contraction of skeletal muscles.

Favorite School Subject/Activities: Digital arts, music, and literature.

Favorite People and/or Pets: I live with my parents, my twin sister, Mary, and my dog Penny.

Interests: I play volleyball for my high school team. I also write fan fiction stories. I love music and want to become a writer or music producer when I’m older.

My Favorite Thing About MDA: I love MDA Summer Camp!

5 Fun Facts About Me: 1. I am in a music production club at school. 2. I love travelling to Disney. 3. My favorite music genres are pop, instrumental & alternative. 4. I enjoy baking. 5. My favorite sports are volleyball and swimming