Oh, Hello 2017 — I’m Ready for You

When I was asked to continue in my role as National Ambassador for MDA in 2017, I had to think about it for about a nanosecond before I gave my answer. Yes, of course! So it’s official: I’ve re-upped for another tour. 2016 will be a hard act to follow, but now that I’m a registered frequent flyer and have a year of ambassadorship under my belt, I can’t wait to try to top it. In fact, I’ve taken the liberty of compiling a list of experiences I’m looking forward to in 2017. Join me, won’t you?

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MDA Holiday Gift Guide

Few things are better than the perfect gift — except, perhaps, the gift that gives love to the recipient and to a whole community as well. This season, surprise your family with gifts that give to MDA families — and MDA research — too. Good Reads Stack your family bookshelf with must-reads that help explain . . .

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Owen’s Becker Muscular Dystrophy Story | MDA South Dakota Ambassador

Owen Prenger of Brandon, S.D., is the embodiment of the MDA’s “Live Unlimited” motto. The active 10-year-old has numerous passions and interests. Above all, he loves to learn and is in the gifted education program in his fourth-grade class. Outside of school, he loves to play Minecraft, his favorite video game, and watch football, especially his . . .

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Ethan Lybrand, MDA Summer Camp, and His Wheelchair Named “Bumblebee”

Ethan Lybrand loves his Bumblebee. On Oct. 27, the 7-year-old became the proud owner of his first power wheelchair. Black and yellow, the chair’s color scheme is inspired by, and named after, his favorite Transformers character, Bumblebee. For Ethan, who has Duchenne muscular dystrophy, getting a wheelchair could have been a tough transition. Instead, Ethan . . .

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Meet Owen, MDA’s 2016 South Dakota State Goodwill Ambassador

Hometown: Brandon, SD Diagnosis: I have Becker muscular dystrophy (BMD). BMD’s onset is usually in late childhood or adolescence. Generalized weakness first affects muscles of the hips, pelvic area, thighs and shoulders. Calves are often enlarged. There can be significant heart involvement. Favorite School Subject/Activities: I am in 3rd grade and my favorite subjects are reading and . . .

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Meet Sylvia: MDA’s California State Goodwill Ambassador

Meet Sylvia Hometown: Oakland, CA Age: 15 Diagnosis: I was diagnosed with Bethlem myopathy. Bethlem myopathy is a type of limb-girdle muscular dystrophy—a group of disorders affecting voluntary muscles, mainly those around the hips and shoulders. Favorite School Subject/Activities: My favorite subjects are leadership and geometry. Favorite People: My favorite person is Ellen DeGeneres and I also love my dogs Ronnie and . . .

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