Pat Quinn, co-founder of the ALS Association’s Ice Bucket Challenge, has been advocating for ALS awareness, treatments and a cure since his diagnosis with amyotrophic lateral sclerosis (ALS) in 2013. In 2017, Pat received the Wings Over Wall Street Spirit Award, given to a person who has demonstrated extraordinary commitment and dedication to the eradication . . .
John Schwall, chief operating officer and co-founder of IEX, shares a personal connection in the fight against amyotrophic lateral sclerosis (ALS) as his mother suffered a six-year battle with the disease and later passed from complications related to ALS in 2008. John became an MDA supporter and has played a major role in the success . . .
From the time of his wife’s amyotrophic lateral sclerosis (ALS) diagnosis in 2000, Warren Schiffer and his wife, Toni Diamond, dedicated themselves to raising funds to find a cure. The couple founded Wings Over Wall Street and with the support of MDA have been able to host this annual event to raise awareness and money . . .
In 2015, Peter Warlick was diagnosed with amyotrophic lateral sclerosis (ALS). Despite the progression of the disease, Peter continues to be a dedicated father, husband, and American Airlines employee. Peter chose to make a difference for others and the future of ALS. He gathered a team, Warlick’s Warriors, and has raised more than $5 million . . .
In 2018, Sandy Morris, wife and mother of three, was diagnosed with amyotrophic lateral sclerosis (ALS) at the age of 51. Sandy is a passionate advocate for ALS research who aspires to make ALS a priority on this planet with the help of MDA and I am ALS. She has a powerful support group in . . .
In 13 years, MDA’s Night of Hope Gala, hosted every fall in Atlanta, Ga., has raised more than $9 million dedicated to funding critical research focused on treatments for amyotrophic lateral sclerosis (ALS). And one of the event’s biggest champions is also one of the people it benefits most. Ten years ago, Atlanta resident Ed . . .
Since the early 1950s, not long after the Muscular Dystrophy Association’s formation, America’s young people living with muscular dystrophy and related neuromuscular diseases have stepped forward to share their stories, raise awareness of the need for treatments and cures for rare diseases, and represent MDA’s mission with humanity and grace. More than 40 MDA National . . .
Twin brother and sister Michael and Amy Schleicher’s story starts where a lot of kids’ stories do. They looked up to their big brother, Matt, and when he did something cool, Michael and Amy wanted to do it, too. In the case of the fateful summer that would point the twins in a long-term direction, . . .
Feb. 28 is Rare Disease Day, when the collective rare disease community raises awareness of the conditions with which we live and advocates for access to new novel treatments like Spinraza, the first FDA-approved disease-modifying drug for spinal muscular atrophy (SMA), a rare neuromuscular disease that affects people like 18-year-old Marley Robinson. Spinraza is making . . .
On Dec. 23, 2018, the MDA office of Minnesota and the Dakotas received its biggest gift ever — and it came as a surprise from one man who felt connected to MDA’s mission. Steven Williams, a native of Clarkfield, Minn. and a Vietnam War veteran, graduated from college in the mid-1970s with a degree in . . .