Research Study Alert: Survey for Young Adults with Muscular Dystrophy

Researchers at the Hospital for Sick Children in Toronto, Canada are seeking young adults living with muscular dystrophy to participate in a survey about their interest in and experiences receiving genetic information.

Participants will be required to complete a 10-15 minute online survey that collects largely quantitative data, as well as some open-ended responses. After completing the survey, participants may choose to enter a raffle for a Visa gift card.

To be eligible, individuals must meet the following criteria:

  • 16-25 years of age at the time of enrollment
  • Diagnosis of muscular dystrophy
  • Lives in Canada or the USA

Individuals may not be eligible to participate in the following cases:

  • Insufficient reading comprehension or written English language skills to complete the survey
  • Asymptomatic genetic carriers of muscular dystrophy

People interested in participating in this survey can find more information here: