Scarlett’s Night at MDA Muscle Team Gala

Hockey season is finally underway, and the Chicago Blackhawks have added one more fan to their roster. No, this fan is not a burly teenager who loves to play hockey, or someone mesmerized by the Blackhawks and their Stanley Cup glory of the past six years.

This fan is 5-year-old Scarlett Sepe, an adorably outgoing Chicagoland native and a dedicated Blackhawks fan who has spinal muscular atrophy.

Scarlett’s fandom began at last year’s MDA Muscle Team gala, where she met former Chicago Blackhawk Denis Savard. The two have kept in touch ever since, and this year the duo were “buddies” at the event, meaning Scarlett and Denis were introduced together at the gala and walked into the ballroom together cheered on by the hundreds in attendance.

Although reconnecting with Denis was a highlight of the evening, Scarlett also loved meeting other MDA Muscle Team participants, including wheelchair basketball and Junior Paralympics gold medalist Jared Arambula, and Chicago Bears’ media relations manager, Jim Christman.

Scarlett’s can-do attitude affects all aspects of her life.

“At the age of 5, she believes she can do anything with just a bit of help,” says Scarlett’s mom, Rachel.

This includes riding horses, dancing, and being a friend to all she meets.

Scarlett also has big plans for the future.

“Her dream is to travel to Paris to see the Eiffel Tower and to go to Costa Rica to explore the rainforest and visit the rescue centers for rain forest animals,” Rachel says.

From dedicated hockey fan to equestrian to future world traveler, Scarlett shows all (even professional athletes) the meaning of living unlimited.

Sign up to learn more about how you can help kids like Scarlett live longer and grow stronger.