As the Muscular Dystrophy Association (MDA) continues our commitment to empowering people living with neuromuscular disease, we are excited to share our 2022 blog series: “Quest for Success”. Success looks different to everyone and this monthly blog details the different paths that individuals with neuromuscular disease have taken to reach their potential and the steps . . .
It’s an honor to be able to share my thoughts on friendship and what that means to me to celebrate friendship day! For those of you who have been around long enough to remember the popular Dionne Warwick song, “That’s What Friends Are For”, you may remember the chorus which says, “Keep smiling, keep shining, . . .
The Muscular Dystrophy Association (MDA) today announced that the 35th Annual Trans New Hampshire Bike Ride (TNHBR) held on June 25, starting and ending at the Portsmouth Senior Center in Portsmouth, New Hampshire, raised over $98,000 for the organization’s mission, with funds still cycling in. The event featured over 40 in-person riders as well as . . .
We’re back! After a 3-year hiatus, advocates are going back to Capitol Hill, but this time virtually. We’re excited to announce that the MDA Advocacy Institute: Virtual Summit and Hill Day will take place on September 28th and 29th, and we hope you can join us! The Virtual Summit & Hill Day is the perfect . . .
Style Momentum: Gaining Independence Through Accessible Design and Self-Expression The Year of Independence shines a light on ways the MDA community can effect change in 2022 and beyond — from career to personal relationships to the clothes we wear. When it comes to fashion and style, people living with disabilities have been using their voices . . .
Anyone who knows softball and baseball the way that Kevin “Joey” Daily does, knows that DeMarini bats are some of the finest performance bats on the market. In addition to a variety of doublewall and singlewall top-of-the-line bats, Demarini also releases an annual, limited-edition bat. These special edition bats are produced in incredibly small batches . . .
When Elisa Ramos, a 28-year-old Central Valley, California, resident with myasthenia gravis (MG), walks into a restaurant with her partner, she’s keenly aware of the looks. “I already face discrimination and displacement because of my disability,” she says. “My scars, medical equipment, and dragging feet get attention, and being with a female partner amplifies that.” . . .
Neuromuscular disease refers to a diverse group of rare conditions that affect some part of the neuromuscular system, such as: Muscles Nerves in the peripheral nervous system (arms and legs) Nerves in the central nervous system (spinal cord) The neuromuscular junction, where nerves and muscles meet Neuromuscular diseases generally cause muscle weakness, fatigue, and other . . .
Living as an adult with a disability means trusting other people to assist you with daily tasks, some of which are intimate or make you feel vulnerable. How you approach hiring personal care attendants (PCAs) to perform those caregiving tasks is a personal choice. Some people prefer to use a home health agency, which streamlines . . .
Thursday night, June 2, 2022, individuals from the Muscular Dystrophy Association (MDA), along with local volunteers, MDA families and MDA partners descended on Hotel ZaZa in Memorial City, Houston, Texas for what was truly a magical night. The evening consisted of a never-ending photo-op station, lots of conversation and reconnecting with friends, food AND the . . .