Tag: Dermatomyositis (DM)

Adults, News, Research, Living with Muscular Dystrophy

Clinical Trial Alert: Phase 2 Study of Ravulizumab (Ultomiris) in Adults Living with Dermatomyositis

MDA Staff

Researchers at Alexion Pharmaceuticals are seeking adults living with dermatomyositis to participate in a phase 2 clinical trial to evaluate the safety, effectiveness, and pharmacological properties of the investigational drug ravulizumab (Ultomiris). Ravulizumab is designed to target a component of the immune system (known as complement), which underlies many autoimmune disorders including dermatomyositis. Treatment with ravulizumab . . .

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News

FDA approves Octapharma’s Octagam® 10% for Treatment of Adults with Dermatomyositis

Sujatha Gurunathan

On July 20, the US Food and Drug Administration (FDA) granted approval to Octagam® 10% for the treatment of adult dermatomyositis, a rare immune-mediated inflammatory disease. Octagam® 10% is the first and only intravenous immunoglobulin (IVIg) approved for dermatomyositis. Dermatomyositis is an autoimmune condition that involves inflammation of muscles and associated tissues, such as the blood vessels that supply the muscles. The . . .

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Adults, Muscle Walk, Living with Muscular Dystrophy, Summer Camp, Fundraising & Events

You’ve Got to Give Back: Former Camper Fundraises for New Generation at MDA Muscle Walk

Erinn Unger

In MDA, Destiny found the support and community she needed to live fully as a 12-year-old, as a college student and now as a mom to two kids. That’s why she’s been a passionate Muscle Walk fundraiser for the past 15 years, whether she was well enough to walk in the event or not. That’s why she’ll continue participating.

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Fill the Boot, Kids, Fundraising & Events, Uncategorized

Boy with juvenile dermatomyositis scores a touchdown

Stephanie Hlywak

For more than 60 years, firefighters have teamed with MDA to fight back against muscular dystrophy, ALS and related life-threatening diseases.

For one firefighter, the cause became very personal when his son, Chandler Mallen, was diagnosed with juvenile dermatomyositis, a neuromuscular disease that involves inflammation of the muscles. When Chandler asked his father — Scott, a firefighter who has collected donations for MDA’s Fill the Boot program for almost 25 years — if he’d lose the use of his legs, he didn’t wait for an answer.

“Even if I do,” Chandler said, “I’ll never stop trying.”

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