Limited Edition DeMarini Bat to Raise Awareness for MDA

Anyone who knows softball and baseball the way that Kevin “Joey” Daily does, knows that DeMarini bats are some of the finest performance bats on the market. In addition to a variety of doublewall and singlewall top-of-the-line bats, Demarini also releases an annual, limited-edition bat. These special edition bats are produced in incredibly small batches . . .

Read More

MDA Chicago Muscle Walk MC Billy Z is Changing the World One Slice at a Time

Eight years ago, if you were looking for Billy Zureikat you would find him on the basketball court. The 38-year-old, former ESPN producer and current logistics manager’s passion was on the court. That all changed when years of symptoms and eventually a diagnosis in 2021 of limb girdle muscular dystrophy (LGMD) began to impact his . . .

Read More

MDA Let’s Play Community Spotlight: NegaGrier

Jeff Shaw, program manager for MDA Let’s Play, MDA’s online gaming and streaming community, is part of a team that leads Saturday Game Nights on Twitch, celebrity streamer events for MDA, tournaments with great teams and players, and steadfast support and discussion on the MDA Let’s Play Discord server channel. Among our many great friends . . .

Read More

What’s New for MDA Muscle Walk in 2020

Since 2011, MDA Muscle Walks have been gathering individuals living with muscular dystrophy, ALS, and related neuromuscular diseases with their families, friends, and communities across America. Together, they’ve raised awareness of everyday life with muscle disease — and they’ve raised $49 million to fund expert care and innovative research directed toward delivering cures. This year, . . .

Read More

What’s #GivingTuesday All About?

#GivingTuesday, annually held immediately after the Black Friday and Cyber Monday holiday shopping days following Thanksgiving, falls late this year on Dec. 3. But here at MDA, we’re already planning on how we can all join together during this Season of Will to celebrate the loved ones we know impacted by muscular dystrophy, ALS, and . . .

Read More

Casey’s General Stores Round Up for MDA

This September, at Casey’s General Stores in 16 states across the Midwest, employees have been doing more than serving guests. They’ve been serving the MDA community, too, inviting store guests to round purchase totals up to the nearest whole dollar to support individuals and families impacted by neuromuscular disease. Now in its 13th year of . . .

Read More

“How Muscular Dystrophy Changed my Life”: A Diagnosis that Led to an Incredible Cross-Country Journey

In May 2019, Jon Olson set out from Astoria, Oregon to bike across the US. He’s dedicating his miles to MDA, the research and care it supports, and the community it — and Jon — represents. So far, he’s raised more than $10,000. He’s ridden more than 2,500 miles and has about 1,000 left to . . .

Read More