Jeramiha Hometown: Weston, West Virginia Age: 14 Diagnosis: Duchenne muscular dystrophy (DMD), a genetic disorder characterized by progressive muscle degeneration and weakness. It is one of nine types of muscular dystrophy. Favorite School Subject/Activities: I love anything to do with sports! Favorite People and/or Pets: I live with my mom Ashley, stepdad Daniel, and siblings Dakota, Jayleigh, and Malik. . . .
For Mindy Scheier, the founder of Runway of Dreams, making a difference for the muscular dystrophy community means thinking both long and short term. Since her son Oliver was diagnosed with a rare form of muscular dystrophy, she has channeled her energy into finding a cure. Together with her family, she has helped raise more . . .
Grace Hometown: Middletown, Delaware Age: 15 Diagnosis: I was diagnosed with myotonia congenita in 2006 at the MDA Clinic at A.I.duPont Hospital. Myotonia congenita is an inherited myopathy, a disease that causes problems with the tone and contraction of skeletal muscles. Favorite School Subject/Activities: Digital arts, music, and literature. Favorite People and/or Pets: I live with my parents, . . .
Kasey Bennett loves football. In fact, it was during one of his games that his parents noticed there was something different about their young quarterback. “He couldn’t keep up with the other kids,” says his father. Soon after, Kasey was diagnosed with DMD. The disease has taken him out of the game but it hasn’t . . .
Zane Jacobs is a “wild and crazy” 7-year-old who “loves to get dirty and cause absolute chaos.” Though he is affected by DMD, he and his family are determined to make the most of their time together, whether that’s playing football in the front yard or swimming at the waterpark. When not horsing around with . . .
Elizabeth earned a degree in graphic art from San Diego State University. She first specialized in printmaking and received numerous awards for her works, including Best of Show. In 1990, Beth began working in watermedia, and she frequently had works in juried exhibitions. Her husband, Mike, also has paintings in the MDA Art Collection, and . . .
New Berlin fourth-grader continues to advocate for MDA through historic awareness program CHICAGO, Jan. 8, 2015 — Reagan Imhoff spent 2014 jet-setting across the country, capturing the hearts of many as the face and voice of the Muscular Dystrophy Association — and now the 9-year-old will return as the 2015 National Goodwill Ambassador. Video: Meet Reagan . . .
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