Young adults living with Charcot-Marie-Tooth disease: You can help in a new study.
Allison Eveler, a senior occupational therapy major at Elizabethtown College in Pennsylvania, is conducting an undergraduate research study to determine the impacts of CMT on the social participation of young adults. Allison, who herself lives with CMT, recognized a need for research on how the disease affects daily living and hopes this survey will uncover common themes for further study.
Young adults age 18 and older can take Allison’s survey online; all responses are anonymous. The survey, which takes approximately 30 minutes to complete, contains eight demographic questions and 35 questions from a Patient-Reported Outcomes Measurement Information System (PROMIS) measure that address participants’ ability to take part in social roles and activities.
If you have questions about the project, contact Debbie Waltermire, DrPH, OTR/L at firstname.lastname@example.org or the Elizabethtown College Institutional Review Board at email@example.com.