Family Meeting Will Bring Together Individuals with RYR1-Related Muscle Weakness

RYR-1Individuals with central core disease (CCD), centronuclear myopathy (CNM), multiminicore myopathy (MMC) or other diseases caused by a mutation in the ryanodine receptor (RYR-1) are invited to attend the first-ever RYR-1 International Family Conference, organized by the RYR-1 Foundation, July 22-24, 2016, in Baltimore.

At the conference, you will be able to view presentations by more than 15 world-renowned medical experts, researchers, an ADA specialist and psychologists that will include information on topics such as the role of calcium in RYR-1 myopathies, RYR-1 research, malignant hyperthermia, and the social and emotional challenges of living with RYR-1 myopathy. Updates will be provided on current and future RYR-1 clinical trials. (For more, view the full agenda.) In addition, the conference provides the opportunity for people impacted by an RYR1-related condition to meet others who face some of the same physical, emotional and social challenges.

Registration is $30 per person; children 3 years and under may attend at no cost. Registration may be completed online at:

For more information about the 2016 RYR1 Family Conference, visit the RYR-1 Foundation’s website. For questions, email, or call (412) 275-3398.