Marjaneh Shaker, Age 11
Honolulu, HI

Home and Family

Marjaneh is the daughter of Morad and Marjan Shaker. She is a big sister to Alex and Anahita. Marjaneh is a local girl, born in Honolulu.

Diagnosis

Marjaneh has Congenital Muscular Dystrophy. CMD is a muscular dystrophy which usually becomes apparent at or near birth. In general, it’s a genetic, degenerative disease primarily affecting voluntary muscles.

School

Marjaneh is homeschooled and has a private tutor who comes to her home.

Interests

Marjaneh enjoys listening to Radio Disney on her iPhone and singing along to her karaoke app. Her favorite artist of all time is Ross Lynch from R5 and her favorite television show is Austin and Alley. Her favorite color is pink. She also enjoys baking and cooking, and her favorite foods are brownies and cookies. Marjaneh’s favorite person is her baby sister. She really enjoyed being part of the Muscle Walk this year. She got to spend time with her friends and meet a lot people affected by muscle disease.

MDA Activities

Marjaneh is enjoying her second term as MDA Hawaii’s Goodwill Ambassador. She is excited to continue to make public appearances and give talks to people about muscular dystrophy and what MDA means to her. In her role as MDA Hawaii’s Goodwill Ambassador, Marjaneh and her parents will travel throughout Oahu to attend the MDA Spring Soiree, Muscle Walk, Fill the Boot, and our Lei of Hope kickoffs at several major stores/restaurants locations throughout the island. She had a large group come support her and the rest of the participants at the 2014 annual MDA Muscle Walk. Marjaneh is vibrant, well spoken, and very comfortable communicating with anyone. She is a sparkle of light when she enters a room.