An expression of the live unlimited spirit, stories and voices of the MDA community
The Muscular Dystrophy Association (MDA) today announced that Jiffy Lube has raised more than $1 million during the fourth annual MUSCLE UP!SM campaign to help kids and adults with muscular dystrophy, ALS and related muscle-debilitating diseases live longer and grow stronger. “Each day, kids and adults with neuromuscular diseases are losing their ability to do . . .
Diane Merry, associate professor at Thomas Jefferson University in Philadelphia, is working to identify therapeutic opportunities to promote normal androgen receptor function while preventing the toxic effects of polyglutamine expansion in spinal-bulbar muscular atrophy (SBMA). With GlaxoSmithKline, Merry will test small molecule compounds that activate an enzyme called SIRT1 in cell and mouse models of . . .
Liza Pon, professor in the department of pathology and cell biology at Columbia University in New York was awarded an MDA research grant totaling $300,000 over three years to study the underlying mechanisms at work in CHKB congenital muscular dystrophy (CMD). Pon also will test whether therapies that promote function of a protein known as . . .
Home and Family Reagan, 10, is the daughter of Jenny and Joe Imhoff. She is from New Berlin, Wisconsin. Birthday May 11, 2005 Diagnosis Reagan has spinal muscular atrophy (SMA type 2), a genetic disease affecting the part of the nervous system that controls voluntary muscle movement. Type 2 SMA is a progressive muscle disease . . .
#MDAshamrocks ATLANTA, March 6, 2015 — Kroger-Atlanta Division stores will raise money this spring to help the Muscular Dystrophy Association save and improve the lives of people fighting muscle disease by participating in the 33rd annual MDA Shamrock program. From March 8 through March 21, Kroger customers and associates can help accelerate progress in the . . .
Dear Grandpa, I have been thinking about you a lot lately. I miss you. You died a few months before my 20th birthday. Two-thirds of my life here on earth has been without you. So many of the people I love never knew you. Actually, though, I only knew the last 20 years of your . . .
My ALS progression may be slow and the changes I notice may be quite small at this time, but they’re there. Subtle or not, I am aware of the changes. A small change that makes me sad is losing what remained of my speech. I keep trying. But it’s really gone. I miss it most . . .
Elizabeth earned a degree in graphic art from San Diego State University. She first specialized in printmaking and received numerous awards for her works, including Best of Show. In 1990, Beth began working in watermedia, and she frequently had works in juried exhibitions. Her husband, Mike, also has paintings in the MDA Art Collection, and . . .
Kevin Foust, assistant professor in the department of neuroscience at Ohio State University in Columbus, was awarded an MDA research grant totaling $293,378 over three years to investigate disruption of gut bacteria in spinal muscular atrophy (SMA). The gut microbiome is the collection of organisms that inhabit a healthy gastrointestinal (GI) tract. Dysbiosis, or changes . . .
Diane Merry, associate professor at Thomas Jefferson University in Philadelphia, was awarded an MDA research grant totaling $300,000 over three years to identify therapeutic opportunities to promote normal androgen receptor function while preventing the toxic effects of polyglutamine expansion in spinal-bulbar muscular atrophy (SBMA). Working with GlaxoSmithKline, Merry will test small molecule compounds that activate . . .
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