A Word from MDA Chairman of the Board Dr. Rodney Howell
MDA’s Chairman of the Board Dr. Rodney Howell shares gratitude for the breakthroughs MDA families experienced in 2017 and looks forward to what’s to come in 2018.
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An expression of the live unlimited spirit, stories and voices of the MDA community
Updated DMD Care Considerations Aim to Improve Patient Care
With the goal to improve diagnosis and care for people living with Duchenne muscular dystrophy (DMD), the Centers for Disease Control (CDC) today published updated Care Considerations for DMD. The comprehensive set of clinical care recommendations, drafted by a steering committee of experts from a wide range of disciplines with support from MDA, offers care providers guidelines for diagnosing DMD and managing its symptoms.
Have a Great Fundraising Idea? Check Out Your Way for MDA to Make it a Reality!
What do jambalaya, a fun run and a wedding registry all have in common? They have all been used to fundraise for MDA. Learn more about how you can fundraise with “Your Way for MDA” today!
What is the latest in SMA and SBMA Research?
In MDA’s pursuit to find treatments and cures for neuromuscular diseases we awarded four grants to researchers studying SBMA and SMA in 2017. Check out their research here:
What is the Latest in FSHD and FA Research?
During 2017 we were honored to provide four research grants and one development grant to individuals looking to accelerate treatments and cures for FSHD and FA. Learn more about their work:
Dentist Who Sold Star Wars Collectibles with Proceeds Benefiting MDA Shares Special Connection to Patient with DMD
Dr. Paul Chu recently appeared on AMC’s Comic Book Men, selling a piece from his Star Wars collection and donating the proceeds to MDA in memory of his late brother who had DMD.
What is the Latest in Myotonic Dystrophy (DM) Research?
Throughout 2017, MDA awarded five research grants and a clinical research training fellowship to individuals dedicated to finding treatments and cures for myotonic dystrophy (DM).
Former MDA National Ambassador Joe Akmakjian Shares Tips for a Successful Move
Former MDA National Ambassador Joe Akmakjian shares his tips and tricks for a successful moving experience.
Encouraging Results for ACE-083 in FSHD
Acceleron Pharma announced encouraging preliminary results from its phase 2 clinical trial to test the experimental drug ACE-083 in FSHD.
What is the Latest in ALS Research?
In the last year MDA awarded a number of research, development and venture philanthropy grants to individuals dedicated to finding treatments and cures for ALS.
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