An expression of the live unlimited spirit, stories and voices of the MDA community
31-year old Keisha Greaves of Cambridge, Mass., lives her life with flair. With a degree in fashion design and merchandising, this fashionista lives and breathes style. Keisha, who has a subtype-unknown form of limb-girdle muscular dystrophy (LGMD), uses her fashion background to bring together her two of her favorite passions: clothing design and advocacy.
Seven lucky Phoenix-area kids living with neuromuscular diseases received custom adapted bicycles at the recent annual meeting of the American College of Medical Genetics and Genomics.
Researchers are looking for people with ALS and healthy volunteers to participate in the Microbiome Assessment in People with ALS (MAP ALS) study.
As an adult living independently with spinal muscular atrophy (SMA), Joe Akmakjian had to learn to cook for himself with the help of others. “Cooking through the hands of someone else is a talent,” he says.
Excited to try MDA’s new web-based Clinical Trials Finder Tool powered by Antidote? Here are some questions we have received and answers that should make using the tool as seamless as possible.
Matt wants a bright future for his son. That’s why he started the team Archer’s Way and ran with Team Momentum in the United Airlines NYC Half-Marathon in March. His efforts brought in $55,000 and counting for research that will help find treatments and cures for DMD.
Researchers are looking for people to participate in CReATe Consortium’s PGB study to help learn about ALS and related diseases.
MDA Team Momentum is recruiting participants! If you’re on the fence about running, check out what motivates these five Team Momentum athletes.
Myranda Gereau met Ms. Wheelchair Wisconsin as a girl at MDA Summer Camp at age 8. Now, years later, she proudly wears the crown she dreamed of as a child.
Bryant and Sarah Krieger’s son Fritz was diagnosed with Duchenne muscular dystrophy in February of this year. Less than a month later, their family, along with dozens of other supporters, were walking to bring strength to life at the Muscle Walk of Phoenix as part of Team Fritz & Friends. Here, on Fritz’s first birthday, Sarah allows us a glimpse inside her thoughts by sharing these emotional and moving entries from her journal.
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