Strongly


An expression of the live unlimited spirit, stories and voices of the MDA community

Tennessee State Goodwill Ambassador

Aiden Atkins, Age 10 Lebanon, TN Home and Family Aiden is the son of Alan and Michelle. Aiden is outgoing and loves to be the center of attention. He is very well-spoken and converses easily with all who have the opportunity to meet him. Diagnosis Aiden was diagnosed with Congenital Muscular Dystrophy (CMD) in 2008. . . .

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Texas State Goodwill Ambassador

Bryant “B.J.” Bond, Age 12 Stafford, TX Home and Family BJ lives with his mother and miniature poodle, Cinnamon. Diagnosis In 2005, he was diagnosed with Spinal Muscular Atrophy Type III, at Texas Children’s Hospital, an MDA Clinic in Houston. Spinal muscular atrophy (SMA) is a genetic disease affecting the part of the nervous system . . .

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Utah State Goodwill Ambassador

Devin Sundquist, Age 11 Orem, UT Home and Family Devin lives at home with three sisters, his mom and step dad. He loves to play board games and hang out with his family. Diagnosis Devin was diagnosed with Duchenne muscular dystrophy at the age of seven. Duchenne muscular dystrophy (DMD) is a genetic disorder characterized . . .

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Virginia State Goodwill Ambassador

Cassidy Wilson, Age 15 Roanoke, VA Home and Family Cassidy is the son of Jeanne & Dr. Jeffery Wilson. He has two brothers, Alex and Aiden, and a dog, Sammy. Diagnosis Cassidy has Charcot Marie Tooth (Type 2A), which causes damage to the peripheral nerves and relay sensations, like pain and temperature. CMT can cause . . .

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Washington State Goodwill Ambassador

Marion Balderas, Age 13 Moses Lake, WA Home and Family Marion is a happy-go-lucky girl who lives with her mom, Kima, and dad, Izzy. She has two dogs- a poodle named Cloud and a cockapoo named Jager. Diagnosis Congenital Muscular Dystrophy (CMD) refers to a group of muscular dystrophies that become apparent at or near . . .

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West Virginia State Goodwill Ambassador

Joseph G. Killingsworth, Age 15 Point Pleasant, WV Home and Family Joey is the son of Stephanie and Kenny Killingsworth. He also has one little brother. Diagnosis Joey was diagnosed with Mitochondria Myopathy when he was 9 years old. This is a type of muscular dystrophy which affects a specific part of the cells in . . .

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Wisconsin Girl Returns as MDA National Goodwill Ambassador in 2015

New Berlin fourth-grader continues to advocate for MDA through historic awareness program CHICAGO, Jan. 8, 2015 — Reagan Imhoff spent 2014 jet-setting across the country, capturing the hearts of many as the face and voice of the Muscular Dystrophy Association — and now the 9-year-old will return as the 2015 National Goodwill Ambassador. Video: Meet Reagan . . .

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Wisconsin State Goodwill Ambassador

Jacob Smith, Age 13 Burlington, WI Home and Family Jacob lives with his mom Bobbi Ann, dad Kerry, and sister Jessica. Jacob’s dog Minnie is small enough to ride with him in his power wheelchair! Diagnosis Jake was diagnosed with Spinal Muscular Atrophy Type 2 at 14-months of age. Spinal muscular atrophy (SMA) is a . . .

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Wyoming State Goodwill Ambassador – Anthony McCumber

Anthony McCumber, Age 10 Bar Nunn, WY Home and Family Anthony lives with his mom and stepdad, Darshee and Derek Buist, his sister Terra, and stepbrothers Xavier and Zayden. Diagnosis Anthony is diagnosed with Limb-Girdle Muscular Dystrophy. Limb-Girdle muscular dystrophy isn’t one disease. It’s a group of disorders affecting voluntary muscles, mainly those around the . . .

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There’s a Pill for That?

The other day a friend complimented me on my positive attitude and asked how I managed to “find the funny” in everyday things. My reply? “I don’t go looking for it — it finds me! To help you understand, I’ll share a couple of stories from some of my past medical visits to the ALS Clinic. . . .

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