MDA Care Centers Combine Expert Care with Research, Clinical Trials, and Advanced Technology

At more than 150 of the leading healthcare institutions across the US, MDA Care Centers offer top clinical care to individuals living with muscular dystrophy, ALS, and other neuromuscular diseases. Providing access to this expert multidisciplinary care, however, is just one way that Care Centers serve the neuromuscular community. MDA Care Centers are conducting clinical . . .

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At a Cedars-Sinai Care Center, Dr. Robert Baloh Looks Under — and Ahead of — the Microscope for CMT and ALS

Even though the Martinez family lives in Burbank, Calif., within an hour’s drive to Los Angeles’ Cedars-Sinai Medical Center, their road to the hospital’s specialized clinics — to Dr. Robert Baloh and his work there — was a long one. Daniel and Gladis Martinez have two daughters: Genesis, 15, and Isabella, 14, born just 10 . . .

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Updated DMD Care Considerations Aim to Improve Patient Care

With the goal to improve diagnosis and care for people living with Duchenne muscular dystrophy (DMD), the Centers for Disease Control (CDC) today published updated Care Considerations for DMD. The comprehensive set of clinical care recommendations, drafted by a steering committee of experts from a wide range of disciplines with support from MDA, offers care providers guidelines for diagnosing DMD and managing its symptoms.

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A Year of Progress and Promise

MDA began 2016 with an ambitious blueprint, full of changes and improvements — all designed to help us fulfill our mission promise to free individuals and families from the harmful effects of muscular dystrophy and related life-threatening diseases. Now, we reflect on our accomplishments and give thanks to our supporters.

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Why Multidisciplinary Care Matters

Clara was 2 years old when she was diagnosed with congenital muscular dystrophy. Her family was referred to their local Minneapolis MDA Care Center, and when they got there, Clara’s mom, Becky, says it felt “a bit like coming home.” Our MDA Care Center is a huge gift for us as working parents managing a . . .

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What You Did: Your #LiveUnlimited Impact

This summer, as thousands of you joined our #LiveUnlimited campaign… 1,800 kids attended MDA Summer Camps across the country 2,000+ multidisciplinary team members aided kids and adults at MDA Care Centers in your neighborhoods 226 applications were reviewed for $7 million in research grants MDA will award next month With your support, the urgent work we do continues every day. In . . .

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