Amin Lakhani is a 29-year-old man with CMT. After graduating second in his high school class of 700 students, getting two degrees from an Ivy League university and landing his dream job at Microsoft, he thought he had finally made it. But something wasn’t right because he felt completely alone. He hadn’t learned how to . . .
Former MDA National Ambassador Joe Akmakjian shares his tips and tricks for a successful moving experience.
As we celebrate the new year, former MDA National Ambassador Joe Akmakjian takes the time to celebrate accomplishments of the past while looking forward to the opportunities that lie ahead.
Bill Weis, a long time MDA supporter, recently met Robbie Ivey, a young man with DMD. Together, they used smart speakers and voice automation to outfit his bedroom and help this young man live unlimited.
The Cochran’s, whose daughter Lindsay lives with SMA, share their experiences providing care to a loved one who lives with a NMD.
In recognition of National Disability Employment Awareness Month, Sawsan, who lives w SMA, shares her experience of joining the work force.
Meet Lauren McLane, a young adult living with FSHD who’s exploring her independence with some help from SYNERGY HomeCare.
MDA National Ambassador Joe Akmakjian debunks a few myths about SMA in recognition of SMA Awareness Month.
On August 17, Bryan Steward will begin his hike on the 500-mile Camino de Santiago in Northern Spain. What makes his trip special is that Bryan lives with Becker muscular dystrophy, and he’s undertaking this arduous trek because he knows he may not be able to someday soon. He’s also following in the steps of other MDA supporters, Justin Skeesuck and Patrick Gray, who also hiked the Camino and will be sharing their story with the world this fall in the film I’ll Push You, benefiting MDA.
Heading off to college and wondering how to find a personal care assistant? Megan Crowley, who lives with Pompe disease, shares her tips.
