Tackle Your Hunger — and Help MDA — at Chipotle on March 16
Select Chipotle locations across the country are donating proceeds to MDA!
Author: Lindsey Baker
Louisiana Family Puts Their Own Spin on MDA Fundraising
The Wood family, whose son George lives w LGMD, has raised thousands of dollars for MDA by cooking jambalaya.
There’s Life With CMT, and There’s Also Everyday Life
Lindsey Baker, who lives with CMT, writes about adjusting to life after the end of a relationship.
A New Resource for MDA Families Living with CMT
Written by and for the CMT community, the new book collects the experiences and advice of those living with CMT on subjects ranging from bracing and stretching to employment and transportation.
Bye Bye, Betty: Things I Learned on my First Trip With Medical Equipment
When I was 25, I took an unlikely job as an editor at a travel magazine. As a journalism graduate, the editing part of the job was a natural fit; as someone who’d never flown on a plane, the traveling part seemed a little daunting. I’d been diagnosed with Charcot-Marie-Tooth disease six years prior, but . . .
MDA Holiday Gift Guide
Few things are better than the perfect gift — except, perhaps, the gift that gives love to the recipient and to a whole community as well. This season, surprise your family with gifts that give to MDA families — and MDA research — too. Good Reads Stack your family bookshelf with must-reads that help explain . . .
From an MDA Care Center to MDA’s National Office: Our New Digital Marketing Manager Reflects on Having CMT
September is Charcot-Marie-Tooth Awareness Month. And this month — this year — I’ve never been more aware of CMT. I was diagnosed when I was 19, after a series of falls and half a semester of college note-taking during which I suddenly couldn’t hold a pen. I couldn’t tie my shoes. I struggled with buttons. . . .
Paul thought muscular dystrophy meant putting his dreams on hold. Now he is living unlimited and saying “Watch me!”
Paul Robertson can tell you how falling down can change the course of your life, twice—for worse and for better. For many years, he experienced a series of trips and stumbles, small difficulties getting around and a propensity to catch his feet and toes. His sister Nicole, 11 years younger, had similar tendencies. Maybe they . . .
