Marjaneh Shaker, Age 11 Honolulu, HI Home and Family Marjaneh is the daughter of Morad and Marjan Shaker. She is a big sister to Alex and Anahita. Marjaneh is a local girl, born in Honolulu. Diagnosis Marjaneh has Congenital Muscular Dystrophy. CMD is a muscular dystrophy which usually becomes apparent at or near birth. In . . .
Jayden Long, Age 7 Nampa, ID Home and Family Jayden lives at home with his mom and dad, a dog, 3 Koi fish, 1 rainbow shark, and 1 sucker fish. Diagnosis Jayden was diagnosed with Mitochondrial Myopathy at the age of 3, shortly after his younger brother Jaxon passed away. The main problems associated with . . .
Lizzie Chamberlain, Age 12 Jacksonville, IL Home and Family Lizzie is the daughter of Lori and Jeff Chamberlain and is the younger sibling of Corinne (20) and Zachary (15). Diagnosis At the age of 11, Lizzie was diagnosed with Spinal Muscular Atrophy Type 3. Spinal muscular atrophy (SMA) is a genetic disease affecting the part . . .
Noah Tompkins, Age 15 Bloomington, IN Home and Family Noah is the son of Darla and Doug Tompkins. He has two brothers. Diagnosis Noah was diagnosed with Limb-girdle muscular dystrophy (LGMD) in October 2015. Limb-Girdle muscular dystrophy isn’t one disease. It’s a group of disorders affecting voluntary muscles, mainly those around the hips and shoulders. . . .
Quinn Anton-Jensen, Age 9 Hiawatha, IA Home and Family Quinn lives with his mom, dad, and two older brothers; Grant who is 15 and Drew who is 12. The family pet is a Shitzu-Poodle named Madison-Belle. Quinn is the only one in his family affected with SMA. Diagnosis Spinal muscular atrophy (SMA) is a genetic . . .
Lindsay Cochran, Age 11 Gardner, KS Home and Family Lindsay lives with her mom and dad, Tracy and Walt, and brother, Trenton. Diagnosis Lindsay was diagnosed with Spinal Muscular Atrophy Type 2 in May 2004, at 8 months old, and relies on a power wheelchair for all of her mobility. Spinal muscular atrophy (SMA) is . . .
Brayden Tiernan, Age 6 Fairdale, KY Home and Family Brayden is the son of Patrick and Rebecca Tiernan. He has 2 brothers, a dog and 2 cats. Diagnosis Brayden has Charcot Marie Tooth disease (CMT). CMT causes muscle weakness and atrophy, and some loss of sensation in the feet, the lower legs, the hands and . . .
Rivers Lacrouts, Age 11 Metairie, LA Home and Family Rivers lives in the Greater New Orleans area and has a pet dog named Raven. He is a happy spirit and is very well-spoken. His mom says he has never met a stranger! Diagnosis Spinal muscular atrophy (SMA) is a genetic disease affecting the part of . . .
Jared Conant, Age 10 Yarmouth, ME Home and Family Jared lives with his father Barry and new puppy, Autumn. Diagnosis Jared was diagnosed with Duchenne Muscular Dystrophy (DMD) at the age of 8. DMD is a genetic disorder characterized by progressive muscle degeneration and weakness. DMD is caused by an absence of dystrophin, a protein . . .
Kourtney Rivers, Age 13 Severn, MD Home and Family Kourtney lives with her mom Jackie, dad Tom, and their 2 dogs, Ruby and Lily. Diagnosis Kourtney was diagnosed when she was a year old with Myotonic Muscular Dystrophy, a form of muscular dystrophy that affects muscles and many other organs in the body. MMD causes . . .
