Hometown: Brandon, SD Diagnosis: I have Becker muscular dystrophy (BMD). BMD’s onset is usually in late childhood or adolescence. Generalized weakness first affects muscles of the hips, pelvic area, thighs and shoulders. Calves are often enlarged. There can be significant heart involvement. Favorite School Subject/Activities: I am in 3rd grade and my favorite subjects are reading and . . .
Meet Sylvia Hometown: Oakland, CA Age: 15 Diagnosis: I was diagnosed with Bethlem myopathy. Bethlem myopathy is a type of limb-girdle muscular dystrophy—a group of disorders affecting voluntary muscles, mainly those around the hips and shoulders. Favorite School Subject/Activities: My favorite subjects are leadership and geometry. Favorite People: My favorite person is Ellen DeGeneres and I also love my dogs Ronnie and . . .
Meet Cadence Hometown: Havre, Montana Age: 9 Diagnosis: I have an unspecified myopathy. Myopathies are diseases that cause problems with the tone and contraction of skeletal muscles. Favorite School Subject/Activities: Art, Reading, Rocket Math and Science are my favorite things about school. Favorite People and/or Pets: I love dolphins, including the Miami Dolphins. Although my #1 animal is . . .
Noah Hometown: Cortland, NY Age: 17 Diagnosis: I was diagnosed with Duchenne Muscular Dystrophy (DMD) Favorite School Subjects/Activities: My favorite school subject is history. Favorite People: My favorite people are my parents and my sister Katie. I also love spending time with my grandpa and my cat, Smokey, who is 16 years old. Interests: I like to read and I also . . .
They say “What happens in Vegas stays in Vegas.” But my experience at the 53rd International Association of Fire Fighters convention was too good not to share with you. This wasn’t my first trip to Las Vegas, but it was the first time I found myself in Sin City on business. This trip made me . . .
Navigating through college isn’t easy for anyone, but it can be especially tricky for people with disabilities. Here are some quick tips to help those of you heading off to college this fall — as well as anyone considering attending university one day. 1. Pick a school you want to attend, not one you are . . .
Cohl Hometown: Exeter, NH Age: 9 Diagnosis: I was diagnosed with Spinal Muscular Atrophy, Type 3, at age 8. Spinal Muscular Atrophy (SMA) is a genetic disease affecting the part of the nervous system that controls voluntary muscle movement. Favorite School Subject/Activities: My favorite subject in school is social studies. Favorite People: My mom, dad, sister, Ava, and cat, Celine . . .
Brayden Hometown: Fairdale, KY Age: 8 Diagnosis: Charcot-Marie Tooth (CMT) Favorite School Subject/Activities: I enjoy Math, GymTyme Cheer, and being in the spotlight. Favorite People and/or Pets: I like Spiderman, Batman, The Flash, and The Arrow. Other people I really like are my mom, dad and brothers, Dylan and Nate. I have two dogs and two cats. Interests: I love . . .
Hailey Hometown: Bismarck, ND Age: 16 Diagnosis: In 2001, I was diagnosed with Spinal Muscular Atrophy (SMA) Type 2. I was just 2 years old. SMA is a genetic disease affecting the part of the nervous system that controls voluntary muscle movement. Favorite School Subject/Activities: When I am in school, I like English & Biology class the . . .
Kierra Hometown: Waxhaw, NC Age: 11 Diagnosis: Ullrich muscular dystrophy Favorite School Subject/Activities: I enjoy reading, writing and art. Favorite People and/or Pets: I love my parents and big brother, Aidan. I have the most wonderful and supportive friends, teachers and doctors. However, my most favorites are all of the camp counselors from MDA Summer Camp. Interests: I . . .