Meet Kierra, MDA’s 2016 State Goodwill Ambassador from North Carolina

Kierra Hometown: Waxhaw, NC Age: 11 Diagnosis: Ullrich muscular dystrophy Favorite School Subject/Activities: I enjoy reading, writing and art. Favorite People and/or Pets: I love my parents and big brother, Aidan. I have the most wonderful and supportive friends, teachers and doctors. However, my most favorites are all of the camp counselors from MDA Summer Camp. Interests: I . . .

Read More

Meet Hunter, MDA’s 2016 State Goodwill Ambassador from Minnesota

Hunter Hometown: Burnsville, MN Age: 10 Diagnosis: Charcot-Marie-Tooth Disease (CMT), which causes muscle weakness and atrophy, and some loss of sensation in the feet, the lower legs, the hands and the forearms. Favorite School Subject/Activities: Art and time in the library. Favorite People and/or Pets: I live with my parents, Alan and Dana, and my younger brother Hayden (7). . . .

Read More

Meet Devin, MDA’s 2016 State Goodwill Ambassador from Wisconsin

Devin Hometown: Manitowoc, Wisconsin Diagnosis: Duchenne muscular dystrophy Age: 14 Favorite School Subject/Activities: I really like science and health. Favorite People and/or Pets: I love my family, my dogs and everyone at MDA. Interests: I enjoy drawing cars, watching sports, riding ATVs, making hand-made rainbow loom bracelets and playing video games. My favorite Things About MDA: MDA helps so many people. . . .

Read More

Meet Payton, MDA’s 2016 State Goodwill Ambassador from Ohio

Payton Hometown: Cincinnati, Ohio Age: 13 Diagnosis: Congenital Muscular Dystrophy (CMD), a group of muscular dystrophies that become apparent at or near birth. CMD results in overall muscle weakness with possible joint stiffness or looseness. Favorite School Subject/Activities: Reading, writing, and art. Favorite People and/or Pets: I live with my older brother Jacob and my mom, Angela. I also . . .

Read More

Meet Ryan, MDA’s 2016 State Goodwill Ambassador from Illinois

Ryan Hometown: Naperville, IL Age: 13 Diagnosis: I have Duchenne Muscular Dystrophy, which is caused by an absence of dystrophin, a protein that helps keep muscle cells intact. Favorite School Subject/Activities: My favorite school subjects are PE and Math. Favorite People and/or Pets: Aside from my mom, dad, and sisters, I love the Chicago Blackhawks. Interests: I enjoy going to watch . . .

Read More

Meet Jeramiha, MDA’s 2016 State Goodwill Ambassador from West Virginia

Jeramiha Hometown: Weston, West Virginia Age: 14 Diagnosis: Duchenne muscular dystrophy (DMD), a genetic disorder characterized by progressive muscle degeneration and weakness. It is one of nine types of muscular dystrophy. Favorite School Subject/Activities: I love anything to do with sports! Favorite People and/or Pets: I live with my mom Ashley, stepdad Daniel, and siblings Dakota, Jayleigh, and Malik. . . .

Read More

Meet Grace, MDA’s 2016 State Goodwill Ambassador from Delaware

Grace Hometown: Middletown, Delaware Age: 15 Diagnosis: I was diagnosed with myotonia congenita in 2006 at the MDA Clinic at A.I.duPont Hospital. Myotonia congenita is an inherited myopathy, a disease that causes problems with the tone and contraction of skeletal muscles. Favorite School Subject/Activities: Digital arts, music, and literature. Favorite People and/or Pets: I live with my parents, . . .

Read More