Top 4 Emergency Preparedness Tips for MDA Families
Is your family prepared for a weather-related emergency? In anticipation of extreme weather, we’ve pulled the top four tips your family needs to know:
Category: News
Expanding the ABLE Act
August is ABLE to Save month, and in celebration MDA would like to highlight the achievements of the Achieving a Better Life Experience (ABLE) Act and ways to continue its success.
FDA Reauthorization Act Signed Into Law
MDA thanks Congress and the administration for working together in a bipartisan effort to pass the FDA Reauthorization Act.
Soliris Approved to Treat MG in Europe
The FDA is reviewing Soliris, now approved to treat MG in Europe. A decision on the drug is expected on or before 10/23/17.
Remembering Jerry
After the news of MDA champion Jerry Lewis’s passing broke Sunday, scores of admirers took to social media to remember the comedian and philanthropist. Here are just a few of the thousands of tweets sent by some of the entertainment business’ brightest stars — and some of MDA’s staunchest partners. Want to add your remembrance to the chorus? Visit our Tributes page, where we are collecting memories for Jerry’s family.
In Loving Memory of Jerry Lewis
Jerry Lewis, Longtime MDA National Chairman, Telethon Star and Humanitarian, Dies In response to the passing of legendary comedian Jerry Lewis, former national chairman and telethon star of the Muscular Dystrophy Association, the extended MDA family today mourns his loss. Jerry was 91 and lived in Las Vegas, with his wife Sam of 34 years. . . .
ALS Treatment Update: Radicava Webinar
Check out a full recording of the ALS Treatment Update: Radicava webinar. Radicava is now available in the U.S.
ALS Drug Radicava Now Available in U.S.
Mitsubishi Tanabe Pharma America announced that Radicava, treatment for adults with ALS, is now available in the U.S.
ALS Treatment Update: MDA to Host Radicava Webinar July 12
MDA and MT Pharma America will host a webinar to provide ALS families with info about Radicava.
MDA to Host Emflaza Webinar July 6
DMD Families are invited to an Emflaza webinar in partnership with PTC Therapeutics on July 6.
