Few things are better than the perfect gift — except, perhaps, the gift that gives love to the recipient and to a whole community as well. This season, surprise your family with gifts that give to MDA families — and MDA research — too. Good Reads Stack your family bookshelf with must-reads that help explain . . .
When I was a junior in high school, my father was diagnosed with ALS. At the time, I didn’t know what it was or what it meant, and Icould hardly imagine that I would make a career working for an organization whose mission is to find treatments and cures for ALS and other related muscle-debilitating diseases. . . .
A passionate ATV rider and supportive big brother, 14-year old Devin Argall is defying the odds at every turn. The Wisconsin State Goodwill Ambassador was diagnosed with Duchenne muscular dystrophy (DMD) at the age of two, and doctors told him he would likely need a wheelchair by 10 years old. Today, Devin continues to walk . . .
On your marks, get set – live unlimited! As MDA’s Live Unlimited summer campaign approaches its finish line, we want you at the starting line of Live Unlimited Run Day on July 30 to celebrate our collective movement forward – and to run or walk for kids and adults with muscular dystrophy. Joining is easy. Sign up . . .
Living unlimited is when someone faces a difficult, uncomfortable situation or a “limit” placed on them – by themselves or others — but has the fortitude to defy the limit or move through it. Yesterday, at my visit to one of our 80 MDA Summer Camps, I was reminded again and again how our families face and . . .
MDA Amplify is a new mobile app that revolutionizes the way you — an MDA supporter, partner or family — can share MDA news on your own social media channels. To become an MDA Amplifier, download the MDA Amplify app from iTunes or Google Play store (it’s free!), connect your personal social media accounts, and . . .
Andrew Hussey runs to work and he runs home from work. He pounds the pavement on the weekends. He runs upwards of 80 miles a week — more than 600 miles since January — training for the multiple races he’ll run this year. But he doesn’t run all those miles for himself. He runs for . . .
Kourtney Rivers, Age 13 Severn, MD Home and Family Kourtney lives with her mom Jackie, dad Tom, and their 2 dogs, Ruby and Lily. Diagnosis Kourtney was diagnosed when she was a year old with Myotonic Muscular Dystrophy, a form of muscular dystrophy that affects muscles and many other organs in the body. MMD causes . . .
Style Momentum: Gaining Independence Through Accessible Design and Self-Expression The Year of Independence shines a light on ways the MDA community can effect change in 2022 and beyond — from career to personal relationships to the clothes we wear. When it comes to fashion and style, people living with disabilities have been using their voices . . .
Today is the last day of 2022 MDA’s Clinical & Scientific Conference. The theme for today is clinical trials in neuromuscular disease (NMD)! Highlights Best poster winners At the Highlight Session at the end of the day, two awards were presented for outstanding poster presentations. PhD candidate Sarah Holbrook from the Jackson Laboratory at the . . .