Elected Official with BMD Speaks Out Publicly for the First Time about His Disease
Elected official Jason Morgan, who lives with BMD, speaks out publicly for the first time about his disease
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An expression of the live unlimited spirit, stories and voices of the MDA community
LGMD Genetic Testing Program: What You Need to Know
Do you or a loved one live with LGMD? Learn more about MDA’s LGMD genetic testing program and find out how to make an impact on LGMD research.
Update: Advisory Committee Meeting for Translarna
The FDA on Thursday will convene a meeting with the Peripheral and Central Nervous Systems Drugs Advisory Committee (PCNS), to review the new drug application, or NDA, for ataluren (brand name Translarna) DMD.
Five Questions with Researcher Marshall Hogarth
Dr. Marshall Hogarth was awarded an MDA grant to research LGMD2B and Miyoshi myopathy.
I am on the Cutting Edge, Literally, of LGMD Research
Ralph Yaniz foudn himself on the cutting edge, literally, of LGMD research when he donated his muscle and skin cells.
MDA Files Comment as US Senate Considers Graham-Cassidy Health Care Reform Bill
Today the US Senate is holding a hearing on the newest health care reform bill under consideration. MDA has filed the following comment with the Committee in advance of the hearing to urge Congress to avoid rushing through the legislative process and to commit to a bipartisan approach to health care reform.
Hiker with BMD Checks in from the Camino de Santiago
Bryan Steward, who lives with Becker muscular dystrophy, set out to hike the 500-mile Camino de Santiago in Northern Spain last month. As he nears the end of his journey, he checked in again with us to update us on his progress. Justin Skeesuck and Patrick Gray, two other Camino hikers whose film I’ll Push You will be released in a one-night only screening at select theaters nationwide on November 2 and will benefit MDA, respond to Bryan’s entries with wisdom from their own journey.
State Ambassador Who Lives with FA Shares the Only Failure is Not Trying
Angie Wilkerson, who lives with FA, believes the only failure lies in not giving yourself the chance to try something new.
Five Questions with FA Researcher Manuela Corti
Manuela Corti of University of Florida was awarded an MDA grant to study gene therapy in FA
Home Care Helps Young Professional with FSHD Live Unlimited
Meet Lauren McLane, a young adult living with FSHD who’s exploring her independence with some help from SYNERGY HomeCare.
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