We’re back! After a 3-year hiatus, advocates are going back to Capitol Hill, but this time virtually. We’re excited to announce that the MDA Advocacy Institute: Virtual Summit and Hill Day will take place on September 28th and 29th, and we hope you can join us! The Virtual Summit & Hill Day is the perfect . . .
It’s a new year and MDA’s commitment to transforming the lives of people living with neuromuscular disease through advocacy remains a top priority. We accomplished a lot last year, but we still have many vital goals to accomplish in 2022. We are excited to share a sneak peek at the advocacy team’s agenda for the . . .
2021 was another challenging year for many, but once again, MDA’s grassroots advocates were relentless in ensuring lawmakers heard their voices. Throughout the year, our volunteers emailed, called, and met with important decision-makers urging them to act on vital public policy that will improve the lives of people living with neuromuscular disease and their families. . . .
Broken wheelchairs. Inaccessible seating. Hard to navigate aircraft. For too many in the neuromuscular community, traveling by air is not accessible. We sat down with Paul Melmeyer, MDA’s VP of Public Policy and Advocacy to hear about his recent appointment to the Air Carrier Access Act Advisory Committee and the Association’s work on accessible air . . .
There’s no doubt 2020 has been a challenging year, but the commitment and passion of our MDA advocates have truly been a bright spot. As we close out the year, let’s recap your amazing accomplishments. Access to care and therapies from day one Thanks to the actions of advocates, together we made sure the lifesaving . . .
There’s so much in store for the year ahead, and we’re so grateful you’re with us.
Today the US Senate is holding a hearing on the newest health care reform bill under consideration. MDA has filed the following comment with the Committee in advance of the hearing to urge Congress to avoid rushing through the legislative process and to commit to a bipartisan approach to health care reform.
The Senate Appropriations Committee included in its spending bill a $2 billion increase for NIH.
The Senate will soon begin consideration of the S. 1519, National Defense Authorization Act (NDAA), which includes provisions that severely restrict, and in some cases terminate, critical medical research. Please join us in taking action and urging your Senators to support the bipartisan amendment to the National Defense Authorization Act that will ensure funding for biomedical research continues.
August is ABLE to Save month, and in celebration MDA would like to highlight the achievements of the Achieving a Better Life Experience (ABLE) Act and ways to continue its success.
