Three-year-old Paxton is the tiny, grinning powerhouse that keeps his grandpa, Stuart Horton, going. His smile gets Stuart out of bed every morning and, even though it’s tough for the 53-year-old with Charcot-Marie-Tooth disease to travel, it’s his grandson’s future that motivates Stuart to participate in MDA Muscle Walk this year. “It’s the simple things . . .
We’re thrilled to announce a new partnership that will bring MDA’s resources in front of The Mighty‘s wide-reaching readership. MDA will also now have a growing home page on The Mighty where people can get involved with us. The Mighty is a story-based health community focused on improving the lives of people facing disease, disorder and disability. More than . . .
MDA Muscle Walk is a life-changing event that strengthens families and communities. But it’s more than anotherfundraising walk. It’s a powerful experience that forges lifelong connections, celebrates families and the barriers they overcome and turns hope into answers. We will be featuring stories of MDA families and their dedication to Muscle Walk here on Strongly . . .
Reid Wilson always wanted to be a race car driver. At 7 years old, Reid got to meet his hero, professional racer Jeff Gordon. When the little boy told Gordon about his dream, the NASCAR legend had nothing but encouragement. “Go for it,” he told Wilson. He did. Now a NASCAR driver himself and a . . .
It’s the final week of MDA Shamrocks sales, and Lowe’s and many other retailers across the country still have Shamrocks available. As we head into the final days of the 2016 MDA Shamrock season, please continue to encourage your friends and family to support MDA by purchasing Shamrocks wherever they are sold. And don’t forget to . . .
When a family first receives a muscular dystrophy diagnosis, the news can be overwhelming. Families suddenly find themselves faced with the need to learn about the disease, how to manage their loved one’s care, how to find the right resources, and how to plan for what lies ahead. Even those who have traveled this road . . .
Muscular dystrophy couldn’t keep Paul Robertson from the water, and he doesn’t want muscle disease to stop anyone from doing what they love. “When you get on the water, it’s a sense of freedom. It’s just the thrill of the bite, the thrill of the competition, the thrill of being on the water,” the lifelong . . .
The more I do with MDA, the more I learn about all that MDA is doing behind the scenes for our families. The 2016 Clinical Conference is a great example. The conference convenes world-renowned medical professionals to share best practice and discuss research advances — all for the benefit of MDA families. To attend as . . .
Editor’s note: This blog is adapted from remarks Joe delivered today at the opening session of the 2016 MDA Clinical Conference MDA has been a part of my family’s life ever since I was diagnosed with SMA Type 2 at the MDA Care Center at Children’s Hospital Colorado, and being a part of the MDA family has . . .
One of the best parts of being MDA’s National Goodwill Ambassador is getting to travel the country to places I’ve never been before. Visiting Daytona Beach, Florida, to attend Harley-Davidson’s legendary Bike Week allowed me to indulge my deep love of warm weather, palm trees and beach-side al fresco dining. As a Colorado resident, I’m . . .
