A Father’s Celebration
Ralph Yaniz reflects on the milestones of being a father with a neuromuscular disease just in time for Father’s Day.
Category: Adults
A Letter to Dad on Father’s Day
Chris Anselmo, who lives with Miyoshi myopathy, shares a letter to his dad and all MDA dads this Father’s Day.
Caregivers Give Back: Parents of Son with DMD Offer Advice for Others, Raise Money for MDA
The Moctezumas share how they have become experts at caring for their 25-year old son, Michael, who lives with DMD.
“Don’t Be Sad, OK?”: Family Raises Money for ALS Research to Honor Matriarch
When Jone See, a devoted mother of five and doting grandmother to nine, was diagnosed with ALS in December 2014, her loving family and large group of friends channeled their energy into raising money for a cure through the ALS Bike Trek MN. Jone, who passed away on May 3, won’t be there to cheer the team on in person this year, but her spirit, optimism and hope for a cure lives on.
ALS May Run in Catherine’s Family, But So Does Strength and Optimism
A typical day is anything but for Catherine Scott. She fills her time creating weekly dinner menus and recipes, making to-do lists for her kids, doing advocacy work, and working on a book and a new blog. And she does it all with only the movement of her eyes, thanks to an assistive device called a Tobii Dynavox I-15. Catherine acknowledges, “You would think, as a mostly immobile and bedbound person, my life would be uneventful, but you would be wrong.” It’s all part of Catherine’s plan to make the most of every day. “I am living with ALS, not dying from ALS,” she says.
A Letter to Mom on Mother’s Day
Chris Anselmo, who lives with Miyoshi Myopathy, shares a letter to his mom and all MDA moms this Mother’s Day.
A Mother’s Powerful Support in the Face of Muscular Dystrophy
Amy Curran shares a heartfelt thank you to her mom, Ann, who has been a rock throughout her and her three siblings’ journeys with GNE Myopathy.
United by Myotonic Dystrophy, a Daughter Honors her Mom on Mother’s Day — and the 25th Anniversary of Her Death
In the decades since Leslie Krongold’s mother died at the age of 56, she has learned that they likely shared a neuromuscular disease — myotonic dystrophy — and, as Leslie approaches her own 56th birthday next year, she feels more committed than ever to defying the odds her my mother couldn’t.
Finding Strength When Weakness Overwhelms: Filmmaker with Mitochondrial Disease Speaks Out to Empower Others
Filmmaker Tom Caamano, who received a surprise diagnosis of mitochondrial disease in 2009, perseveres despite symptoms, which include muscle weakness and fatigue, that threatened to derail his career. Today, he is not only thriving, he’s helping others facing similar diagnoses feel empowered, too.
Recognizing Contributions of MDA’s Greatest Champions on International Fire Fighters Day
In honor of International Fire Fighters Day we’d like to thank the incredible fire fighters who go above & beyond to save & improve the lives of so many.
