We Carry Kevan – China
Kevan Chandler, who lives with SMA and traveled through Europe in 2016 in a backpack, is heading to China. Along the way, he hopes to inspire others and “demonstrate that life is full of possibility and hope.”
Author: Stephanie Hlywak
The Untold History of MDA Shamrocks
MDA’s iconic paper Shamrocks are synonymous with St. Patrick’s Day for millions of Americans who purchase the symbols of good luck at retailers nationwide to help MDA families live longer and grow stronger. But how did this annual tradition get started? Hint: a bright idea and the luck of the Irish.
Dyla, Who Lives With SMA, is Gaining Strength Thanks to Spinraza
Meet Dyla, a sweet 11- year-old who is greatly benefiting from the recently approved SMA drug, Spinraza.
Faith Fortenberry, Who Lives With SMA, is Seeing Positive Results Thanks to Spinraza
Faith Fortenberry, who lives with SMA, is getting stronger everyday thanks to Spinraza.
Counselor to Council Member: MDA Volunteer Committed to His Community
Meet Richard Leon: MDA Summer Camp counselor, volunteer and a council member in Cape Coral, Florida.
Today is World Duchenne Awareness Day 2017
Learn about our most recently awarded research grants and the DMD families they have the potential to impact.
Remembering Jerry
After the news of MDA champion Jerry Lewis’s passing broke Sunday, scores of admirers took to social media to remember the comedian and philanthropist. Here are just a few of the thousands of tweets sent by some of the entertainment business’ brightest stars — and some of MDA’s staunchest partners. Want to add your remembrance to the chorus? Visit our Tributes page, where we are collecting memories for Jerry’s family.
In Loving Memory of Jerry Lewis
Jerry Lewis, Longtime MDA National Chairman, Telethon Star and Humanitarian, Dies In response to the passing of legendary comedian Jerry Lewis, former national chairman and telethon star of the Muscular Dystrophy Association, the extended MDA family today mourns his loss. Jerry was 91 and lived in Las Vegas, with his wife Sam of 34 years. . . .
Some said he was crazy to bike across America after being diagnosed with ALS. Ray Spooner said “Watch me!”
Ray Spooner, a certified nurse midwife who has ushered thousands of babies into the world, took the Ice Bucket Challenge in summer of 2014 to raise awareness about ALS. At the time, ALS “was just of jumble of letters to us,” said Ray’s wife of 33 years, Rae. Soon though, those letters would take on a . . .
Ray Rides On: New Event Honors Avid Cyclist and ALS Awareness Champion
The inaugural “Ride for Ray” honors Ray Spooner, whose “Little Ride” across the country for MDA raised more than $80,000 for ALS research and support services. A year after his death in August 2016, cyclists from across the country will join family, friends and local supporters to continue the work Ray started.
