To say that Harley-Davidson and MDA were made for each other doesn’t fully do the relationship justice. But for two organizations that may seem on their surfaces to have little in common, there are a number of uncanny similarities. One of them I continue to be surprised by is the spirit of living unlimited. Harley . . .
A strong-willed man and a fun-loving prankster, Ronnie Townsend was “a character,” according to his sister Karen Hicks. Being diagnosed with ALS didn’t change that one bit. “He was a brother and he aggravated me to death,” Karen says, chuckling. “He aggravated me until the day he died.” She was the youngest girl in the family, . . .
Turning 16 years old is a pretty big deal, but Jordan George didn’t want that milestone birthday to be all about her. She wanted to give back. Jordan celebrated her sweet 16 in April by giving a gift to MDA — $1,600 in donations that she had asked for, instead of presents, for her birthday. . . .
Over the last six months, I’ve had the pleasure of meeting great people all over the country. This week’s trip to Georgia was no exception. The Mansfield Golf Classic is a prime demonstration of the commitment our sponsors have to helping individuals and families living with muscle-debilitating diseases. Mansfield Oil Company’s 30-year partnership with . . .
With both of her sons living with muscular dystrophy, MDA Muscle Walk is personal for Tammy Gregory. “I kind of blamed myself when they were first diagnosed,” Tammy says, explaining that she didn’t know she was a carrier of flawed genes that cause Becker muscular dystrophy (BMD). “I don’t blame myself now, but it’s hard . . .
For the founders of the ALS Bike Trek in Minnesota, the event is so much more than just a ride in the park. Founder Justin Rumley lost his dad, Steve, to ALS in 2009. Rett Landers’s brother, Jim, passed from Lou Gehrig’s disease on Thanksgiving in 2008. And Everett Myers’s father, Victor, died just 26 . . .
Thirteen-year-old Dana Parrott has a live unlimited motto, which she faithfully follows. “I may have muscular dystrophy,” she says. “But muscular dystrophy don’t have me!” In so doing, Dana is showing the world that her limits don’t define her. To every doubter and every “you can’t do that,” she says, “watch me.” Diagnosed with limb-girdle muscular dystrophy (LGMD) . . .
Three-year-old Paxton is the tiny, grinning powerhouse that keeps his grandpa, Stuart Horton, going. His smile gets Stuart out of bed every morning and, even though it’s tough for the 53-year-old with Charcot-Marie-Tooth disease to travel, it’s his grandson’s future that motivates Stuart to participate in MDA Muscle Walk this year. “It’s the simple things . . .
For more than 35 years, ERA Real Estate has been committed to enriching the lives of children and adults living with Muscular Dystrophy and other neuromuscular diseases through its support of MDA. In particular, the ERA network has been helping kids living with muscular dystrophy, SMA and related muscle-debilitating diseases have “the best week of the . . .
For Cheryle Elliot and her son, Dakota, the Muscular Dystrophy Association is like a part of the family. From selling MDA Shamrocks to attending their local MDA Lock-Up event to participating in Muscle Walk, they do it all — with Dakota smiling and laughing all the way through. Dakota was born with congenital myotonic muscular . . .