Earlier this Spring, I had the honor of taking part in the 3rd annual Strength, Science and Stories of Inspiration event at the Harvard Science Center in Cambridge, Massachusetts. As a patient with dysferlinopathy (a form of muscular dystrophy), I was heartened to see every seat in the 500-person auditorium filled to support the mission of finding . . .
Editor’s note: The following is adapted from a letter Stephanie Hoover wrote to family and friends to ask them to support her in the Louisville Muscle Walk. We thought her characterization of the impact of her disease and her eloquent description of the community she has found within MDA were worth sharing. We hope you agree. . . .
Data released by the US Department of Labor this month showed that the unemployment rate for people with disabilities is more than double the unemployment rate of those who are considered able bodied. Many factors impact access to employment for those living with disabilities, including a system of benefits and services that are gained and . . .
“For us, living unlimited is an every day thing….” X Ambassadors. From June 20 to July 31, a generous partner will give $1 to the Muscular Dystrophy Association for every #LiveUnlimited moment shared. Create your own #LiveUnlimited moment
This summer, as MDA and our families defy daily challenges together to live unlimited, we’re having a little fun. And on June 24, we’re having a whole lot of it. We’re teaming up with two of Legendary Digital Networks’ top Internet channels – Geek & Sundry, founded by actress Felicia Day, and Smart Girls, founded by Amy Poehler . . .
More than 100 Boston fire fighters and dignitaries, along with the the International Association of Fire Fighters (IAFF), MDA and Boston Fire IAFF Local 718, united today on Memorial Sunday, an annual day to honor Boston’s fallen fire fighters, to celebrate more than 60 years of partnership in the fight against muscular dystrophy, ALS and . . .
Although I would later come to associate MDA Summer Camp with the words joy, freedom and independence, that’s not how I felt in the beginning. In fact, I was terrified to go. When my mom told me she had signed me up for MDA’s summer camp in Empire, Colorado, I threw a massive temper tantrum . . .
Michelle Murphy is an avid runner. She routinely pounds the pavement through the neighborhoods of Albany, NY. When she needs a change of pace, she runs on the path through the park that skirts the Hudson River. Michelle even hoofs it to and from the gym. You’d never guess that the 24-year-old has Myotonic muscular . . .
To say that Harley-Davidson and MDA were made for each other doesn’t fully do the relationship justice. But for two organizations that may seem on their surfaces to have little in common, there are a number of uncanny similarities. One of them I continue to be surprised by is the spirit of living unlimited. Harley . . .
A strong-willed man and a fun-loving prankster, Ronnie Townsend was “a character,” according to his sister Karen Hicks. Being diagnosed with ALS didn’t change that one bit. “He was a brother and he aggravated me to death,” Karen says, chuckling. “He aggravated me until the day he died.” She was the youngest girl in the family, . . .