Southwest Florida Fire Fighters Give Muscular Dystrophy the Boot
IAFF Local 1826 Fill the Boot for MDA no matter what because of a special connection to our mission.
Strongly
An expression of the live unlimited spirit, stories and voices of the MDA community
Miss the Recent Flu Shot Webinar? Here’s Your Chance to Catch Up
Were you unable to attend the the Flu Shot Readiness & Respiratory Health webinar? Find important info here:
Five Questions with Researcher Eduardo Balsa Martinez
Learn about Dr. Eduardo Balsa Martinez’s research to idenitfy therapeutic targets in mitochondrial diseases.
Five Questions with Researchers Nigel Laing, Kristen Nowak and Rhonda Taylor
Dr. Nigel Laing was awarded an MDA research grant to test two potential treatments for McArdle disease.
US Congress moves forward to boost NIH funding
The Senate Appropriations Committee included in its spending bill a $2 billion increase for NIH.
Logan’s Legacy: Fire Fighter Family Shares Story to Inspire Hope
Meet Chris Harman, a fire fighter and member of Phoenix, AZ Local 493, and his wife Shelle, who open up about their son Logan, who passed away from SMA type 1 in 2009.
Simply Stated: What is CMT?
September is #CMTAwareness Month, but do you really know what CMT is and what causes it? Learn more:
CENTAUR ALS Trial Seeks Participants
Researchers are looking for people with ALS to join a clinical trial to test the drug AMX0035.
Just in Time for Back to School: Introducing an Updated Teacher’s Guide to Neuromuscular Disease
Just in time for back to school: updated guides for teachers of students living and learning with neuromuscular diseases
Golodirsen Shows Potential to Treat DMD
Sarepta announced encouraging results from a phase 1/2 DMD clinical trial for golodirsenm which targets exon 53.
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