Five Questions with FSHD Researcher Charles Emerson
Dr. Charles Emerson was awarded an MDA research grant to study FSHD.
Strongly
An expression of the live unlimited spirit, stories and voices of the MDA community
Family impacted by FSHD fights back, one hop at a time
Learn how the Yoken family fights back against FSHD, one hop at a time.
Five Questions with FSHD Researcher Scott Harper
MDA awarded a research grant to Scott Harper of Ohio State University to test a gene therapy for FSHD.
A Father’s Celebration
Ralph Yaniz reflects on the milestones of being a father with a neuromuscular disease just in time for Father’s Day.
A Letter to Dad on Father’s Day
Chris Anselmo, who lives with Miyoshi myopathy, shares a letter to his dad and all MDA dads this Father’s Day.
For the Love of Devin: Josh Argall Races to Find a Cure for His Son — and All MDA Families
This Father’s Day, we’re recognizing an extraordinary MDA dad. Josh Argall was initially devastated by his son Devin’s DMD diagnosis, but once the shock wore off, he resolved to do everything he could for his son and all MDA families. “I can’t discover the new medicine, I can’t provide healthcare, but I can contribute to the mission in my own way, so that’s what I decided to do…There isn’t anything I wouldn’t do for MDA. Knowing how these parents feel and these children feel, that’s what keeps me going.”
Five Questions with Researchers Michael Benatar and Jonathan Katz
Michael Benatar and Jonathan Katz were awarded a clinical research network grant from MDA to support their work on Clinical Procedures To Support Research (CAPTURE) project.
$300,000 MDA Grant Will Streamline Gathering of Data for ALS Research
MDA in June announced the award of a clinical research network grant (CRNG) to Michael Benatar, M.D., Ph.D., at and Jonathan Katz, M.D.
Montana boy first in the state to receive Exondys 51
Trayton, who lives with DMD, is the first boy in Montana to receive the breakthrough DMD treatment Exondys 51
Going the Distance for a Friend: Cyclists Cross Country in Ray Spooner’s Memory
Ira and Lynn Wachtel are cycling cross-country to raise funds and awareness for MDA, in memory of their friend Ray Spooner, who died of ALS on August 8, 2016.
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