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Tag: Lock-Up

Adults, Living with Muscular Dystrophy

Recently Diagnosed with ALS, Northern Kentucky Attorney Raises More Than $11K at MDA Lock-Up

Justine Garrett 07/14/201701/18/2019
ALS

Brian Eviston shares the personal reason he chose to participate in his local MDA Lock-Up.

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Adults, Living with Muscular Dystrophy, Fundraising & Events

An endurance challenge, a cherry picker and a myasthenia gravis diagnosis

Chris Anselmo 01/04/201701/18/2019
myasthenia gravis

Gina Pieroni’s passion for MDA fundraising started with an endurance challenge, a cherry picker and desire to help others.

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Fundraising & Events

MDA Lock-Up Donors & Local Firefighters Help Family Find Strength in Numbers

Stephanie Corcilius 11/09/201601/18/2019

Aaron, 16, is an avid fan of rock music from ’70s to the ’90s — he looks up all the facts about songs, composers and artists as he is listening to them. “He is a veritable fount of trivia on rock music,” says his dad, Richard. Aaron, who was diagnosed with muscular dystrophy in early . . .

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Fundraising & Events, Uncategorized

Join the MDA Lock-Up Jailbird Fall Fundraising Challenge

Stephanie Corcilius 09/26/201601/18/2019

MDA Lock-Up Jailbirds can earn their chance to win a pair of roundtrip airline tickets, Beats wireless headphones or an iPad Air 2. For every $100 Jailbirds raise between now and Friday, November 18  they will be automatically entered into the drawing.* Jailbirds are encouraged to track their progress at their Participant Center, and check . . .

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Adults, Fundraising & Events

Losing a Father to ALS and Raising Money for a Cure: One Daughter’s Story

Elizabeth Hutton 09/08/201601/18/2019

On March 6, 2016, a bomb went off in my life. Its name was ALS. I had vaguely heard of ALS by way of YouTube “Ice Bucket Challenge” videoes. But that day, the most important person in my life, my Dad, Dr. John J. Hutton, was given, as he termed in, “a death sentence.” He . . .

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Fundraising & Events

Texas Woman Gets ‘Locked up’ to Raise Funds in Her Brother’s Memory

Erinn Unger 05/20/201601/18/2019

A strong-willed man and a fun-loving prankster, Ronnie Townsend was “a character,” according to his sister Karen Hicks. Being diagnosed with ALS didn’t change that one bit. “He was a brother and he aggravated me to death,” Karen says, chuckling. “He aggravated me until the day he died.” She was the youngest girl in the family, . . .

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MDA Ambassadors, Muscle Walk, Fundraising & Events

For this Connecticut Family, Finding a Cure Means Giving Back

Erinn Unger 04/21/201612/30/2022

For Cheryle Elliot and her son, Dakota, the Muscular Dystrophy Association is like a part of the family. From selling  MDA Shamrocks to attending their local MDA Lock-Up event to participating in Muscle Walk, they do it all — with Dakota smiling and laughing all the way through. Dakota was born with congenital myotonic muscular . . .

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