Logan’s Legacy: Fire Fighter Family Shares Story to Inspire Hope
Meet Chris Harman, a fire fighter and member of Phoenix, AZ Local 493, and his wife Shelle, who open up about their son Logan, who passed away from SMA type 1 in 2009.
Tag: MDA Muscle Walk
You’ve Got to Give Back: Former Camper Fundraises for New Generation at MDA Muscle Walk
In MDA, Destiny found the support and community she needed to live fully as a 12-year-old, as a college student and now as a mom to two kids. That’s why she’s been a passionate Muscle Walk fundraiser for the past 15 years, whether she was well enough to walk in the event or not. That’s why she’ll continue participating.
A Professional and Personal Passion: Theresa Cox Mixes Business with Pleasure for MDA
Theresa Cox is committed in both her professional and personal life to working with people living with muscular dystrophy and related neuromuscular diseases.
Sharing is Caring: Why the Krieger Family Walks
Bryant and Sarah Krieger’s son Fritz was diagnosed with Duchenne muscular dystrophy in February of this year. Less than a month later, their family, along with dozens of other supporters, were walking to bring strength to life at the Muscle Walk of Phoenix as part of Team Fritz & Friends. Here, on Fritz’s first birthday, Sarah allows us a glimpse inside her thoughts by sharing these emotional and moving entries from her journal.
Nevada 13-Year-Old With Congenital Myasthenia Always Goes Above and Beyond
Jake Roszelle is a “go big or go home” type of guy. Between Jake and his brother, their mom, Krista, is running out of room for all the plaques and medals. “He’s a very spirited go-getter,” Krista says of Jake. “He just never took his disability to heart, I guess. He works 100 percent of . . .
Jared’s Speech on Hope and Courage at an MDA Muscle Walk in Maine
We would like to thank MDA’s Maine State Goodwill Ambassador Jared Conant for allowing us to share his powerful speech made at this year’s MDA Muscle Walk in Maine. “Our devotion to ending all muscle disease is making progress. Yet each day, we need to find the strength to continue to push forward with our . . .
Cast your vote for the 2017 MDA Muscle Walk t-shirt design
2017 MDA Muscle Walk t-shirt design voting is now live! Now’s your chance to cast your vote for your favorite design for the 2017 MDA Muscle Walk t-shirt! Voting ends midnight on Friday, September 16. Ask your family and friends to vote for their favorite design to help push your selection to the top! The . . .
From MDA fundraiser to MDA Executive Director: Sarah Coleman reflects on an unexpected career
When I was a junior in high school, my father was diagnosed with ALS. At the time, I didn’t know what it was or what it meant, and Icould hardly imagine that I would make a career working for an organization whose mission is to find treatments and cures for ALS and other related muscle-debilitating diseases. . . .
Why I Walk: For Community, Camp and Cures
Editor’s note: The following is adapted from a letter Stephanie Hoover wrote to family and friends to ask them to support her in the Louisville Muscle Walk. We thought her characterization of the impact of her disease and her eloquent description of the community she has found within MDA were worth sharing. We hope you agree. . . .
Ohio Mom “Muscle Walks” Toward a Better Future for Her Boys
With both of her sons living with muscular dystrophy, MDA Muscle Walk is personal for Tammy Gregory. “I kind of blamed myself when they were first diagnosed,” Tammy says, explaining that she didn’t know she was a carrier of flawed genes that cause Becker muscular dystrophy (BMD). “I don’t blame myself now, but it’s hard . . .
