Kate, who lives with SMA type 3 and has directly benefited from, Spinraza, a medication that can trace its root back to MDA, encourages supporters to go the distance for MDA via their local MDA Muscle Walks.
When Jayden Long learned four years ago that the firefighters in his hometown of Nampa, Idaho, had to work on Christmas, he devised a plan. “He wanted to deliver baked goods to the firefighters on Christmas day,” recalled his mother, Shellie. “So we baked just about all night and delivered trays of food to three . . .
Melanie Carson has peered into the Grand Canyon and craned her neck looking up at the giant Redwoods of Northern California. She’s felt the mist of waterfalls in Hawaii and gazed at Yosemite’s Half Dome. She’s done it all, and wants to do more. That’s all while living with a rare type of Limb-girdle muscular . . .
“November 1, 2011 was the day that everything changed for our family. We were sitting in a room with no windows and seemingly no air to breathe and the news came like a bulldozer: Duchenne muscular dystrophy, a muscle wasting disease with no cure that is 100% fatal. I couldn’t believe it. All I wanted to . . .
For companies like Casey’s, supporting their community and giving back is not only part of their mission, but it also helps define them as a company. Over the past nine years, Casey’s has supported MDA and the MDA Summer Camp program by raising more than $6.6 million. Their support has helped kids with muscular dystrophy . . .
A passionate ATV rider and supportive big brother, 14-year old Devin Argall is defying the odds at every turn. The Wisconsin State Goodwill Ambassador was diagnosed with Duchenne muscular dystrophy (DMD) at the age of two, and doctors told him he would likely need a wheelchair by 10 years old. Today, Devin continues to walk . . .