Bryant and Sarah Krieger’s son Fritz was diagnosed with Duchenne muscular dystrophy in February of this year. Less than a month later, their family, along with dozens of other supporters, were walking to bring strength to life at the Muscle Walk of Phoenix as part of Team Fritz & Friends. Here, on Fritz’s first birthday, Sarah allows us a glimpse inside her thoughts by sharing these emotional and moving entries from her journal.
Do you ever find yourself saying, almost by default, “I’m tired” when someone asks you how you are doing? Jennifer Massey has more reason than most to respond that way. As a manifesting carrier of DMD, she is often fatigued. But she wants to be more mindful of how she talks about her health.
Colin Batty will be running with MDA Team Momentum in the Boston Marathon to raise funds in honor of family members who live with CMT.
Inspired by a beloved community member with ALS, this Illinois dodgeball tournament is good fun for a good cause.
Over the past 35 years, the MDA Shamrocks program has raised more than $300 million to help save and improve the lives of families living with muscular dystrophy. Get to know Natalie, who graces the 2017 green MDA Shamrock with her sister Avery.
CMT doesn’t hold Nicki back; it pushes her to reach higher. Literally. Read on to follow Nicki on the trek of a lifetime — to the top of Mount Kilimanjaro, the tallest mountain in Africa.
Looking back, neither one of us went to camp expecting to meet the person we’d one day marry. … I can’t imagine my life without Zach. We can’t imagine our lives without our camp family or MDA Summer Camp.
Tammy Carroll, whose daughter Alexas as SMA type 2, shares the importance of birthdays and the FDA’s approval of Spinraza
International Day of Acceptance is a day when people all over the world vow publicly to accept and embrace their challenges and support others no matter their abilities.
When opportunity knocks, 15-year-old Justin answers. Born with CMD, Justin has traveled to China, been on a 500-mile bike ride across Iowa, and even modeled in a fashion show. How? Justin always says, ‘Yes.’ That’s how he lives unlimited.
