Hockey season is finally underway, and the Chicago Blackhawks have added one more fan to their roster. No, this fan is not a burly teenager who loves to play hockey, or someone mesmerized by the Blackhawks and their Stanley Cup glory of the past six years. This fan is 5-year-old Scarlett Sepe, an adorably outgoing . . .
Clara was 2 years old when she was diagnosed with congenital muscular dystrophy. Her family was referred to their local Minneapolis MDA Care Center, and when they got there, Clara’s mom, Becky, says it felt “a bit like coming home.” Our MDA Care Center is a huge gift for us as working parents managing a . . .
Mark Eisenberg was diagnosed with Duchenne muscular dystrophy at the age of 4, but he hasn’t let it stop him from achieving his dreams. He recently graduated from college, where he became largely involved in muscle disease awareness. He now works as a blogger, raising awareness through his current blog, Duchenne Talk. Two years ago . . .
Albertsons Companies Employee’s Daughter Develops Connection for MDA Summer Camp As the second-largest grocery retailer in the country, Albertsons Companies and the Albertsons Companies Foundation, continue to show their passionate support of the Muscular Dystrophy Association (MDA) across the country for over 20 years through in-store fundraising campaigns with their customers, partnering with Acosta Sales . . .
What does a small bird have in common with an ALS diagnosis? Artist Erin Brady Worsham eloquently shares. We are crazy about birds at our house. We have seven feeders scattered around our enclosed backyard and two feeders in the front yard. We have been blessed with a number of tall trees in our yard, . . .
A couple of years ago MDA got to know the Somers family… While Crystal and Cooper continue to mourn the loss of an incredible husband and father, they are able to focus on and appreciate the positives in their life now. Cooper recently turned 6, started first grade and is ready – and excited – . . .
In the fall of 2009, I met a girl. Not in the traditional way — I met Denise via eHarmony. Yes, we were an eHarmony success story. We often joked about the eHarmony commercials with the two incredibly good-looking people dancing in a beautiful garden or around a fountain. We thought how cool it would . . .
When Zac Henderson could no longer play baseball, he joined the school jazz band. When he could no longer hold his instrument, he migrated to the local 4-H. Then it was on to managing his high school’s basketball team. Now Zac has his own film production company thanks to working on the basketball team’s highlight . . .
Bernadette Scarduzio doesn’t like secrets. Her life is an open book — in fact, now it’s a documentary. But Bernadette and her struggles didn’t start out in the spotlight. Her disease was a secret. Born with Charcot-Marie-Tooth Disease or CMT, an inherited disorder which impacts the nerves in the legs and arms, Bernadette was in . . .
On March 6, 2016, a bomb went off in my life. Its name was ALS. I had vaguely heard of ALS by way of YouTube “Ice Bucket Challenge” videoes. But that day, the most important person in my life, my Dad, Dr. John J. Hutton, was given, as he termed in, “a death sentence.” He . . .
