Twin sisters Avery and Kennedy from California were diagnosed with spinal muscular atrophy (SMA) type 2 when they were infants. Now, they are featured on MDA Shamrocks available at Lowe’s Home Improvement across the country this year. They love being involved with the Shamrocks program because it helps fund their favorite part of MDA: dance parties at summer camp!
Fourteen-year-old Kentucky native Gabrielle’s favorite subject is geography, which is appropriate when you have an insatiable desire to travel. Gabrielle, who has spinal muscular atrophy (SMA) Type 2, has already seen a great deal of the world, including Europe, the Caribbean and the western United States. This year, Gabrielle is featured as a “Shamrockstar” on platinum MDA Shamrocks at retailers across the country, a country that Gabrielle has seen extensively in her travels with her family.
Tammy Carroll, whose daughter Alexas as SMA type 2, shares the importance of birthdays and the FDA’s approval of Spinraza
International Day of Acceptance is a day when people all over the world vow publicly to accept and embrace their challenges and support others no matter their abilities.
Encouraging results from an MDA-supported study, have revealed a potential new strategy to treat spinal muscular atrophy (SMA).
Mindy Henderson, who has SMA, shares her story of love and loss with one of America’s most popular cosmetics.
Since its inception, MDA has invested more than $1 billion in neuromuscular disease research to uncover new treatments and cures. In 2016 alone, MDA awarded 66 new research, development and research infrastructure grants with a total funding commitment of more than $17 million. These and other MDA grants fund research projects designed to uncover the . . .
This summer MDA challenged our families, friends, sponsors, staff and others around the nation to share their stories about living life without limits despite the challenges of neuromuscular disease. Some shared moments tied to pursuing an education or career that was thought to be out of reach. Some talked about skydiving, hiking or running a . . .
