Air Force Senior Airman Mike Hall, 20th Aerospace Medicine Squadron flight and operation medical technician conquered the 2017 Boston Marathon with Team Momentum, running for his sister Danielle, in memory of his brother DJ and for all families impacted by neuromuscular diseases.
Seven lucky Phoenix-area kids living with neuromuscular diseases received custom adapted bicycles at the recent annual meeting of the American College of Medical Genetics and Genomics.
Excited to try MDA’s new web-based Clinical Trials Finder Tool powered by Antidote? Here are some questions we have received and answers that should make using the tool as seamless as possible.
MDA Team Momentum is recruiting participants! If you’re on the fence about running, check out what motivates these five Team Momentum athletes.
What’s better than an over the top birthday celebration? An over the top birthday extravaganza that raises funds for MDA Summer Camp.
PTC Therapeutics reached an agreement with Marathon Pharmaceuticals to acquire all rights to Emflaza™ (deflazacort), the first treatment approved in the U.S. for all Duchenne muscular dystrophy (DMD) patients five years and older, regardless of their genetic mutation.
Learn why five MDA families are equally dedicated to Muscle Walk — and why you should also support this incredible cause.
Twin sisters Avery and Kennedy from California were diagnosed with spinal muscular atrophy (SMA) type 2 when they were infants. Now, they are featured on MDA Shamrocks available at Lowe’s Home Improvement across the country this year. They love being involved with the Shamrocks program because it helps fund their favorite part of MDA: dance parties at summer camp!
Colin Batty will be running with MDA Team Momentum in the Boston Marathon to raise funds in honor of family members who live with CMT.
MDA families represent more than 40 different rare diseases—as all of the disorders under MDA’s umbrella are classified as “rare.”
