Faith Fortenberry, Who Lives With SMA, is Seeing Positive Results Thanks to Spinraza
Faith Fortenberry, who lives with SMA, is getting stronger everyday thanks to Spinraza.
Strongly
An expression of the live unlimited spirit, stories and voices of the MDA community
Five Questions with ALS Researcher Udai Pandey
Udai Pandey was awarded an MDA research grant totaling $300,000 over three years to identify new drugs for ALS caused by a mutation in the FUS gene.
The Ultimate Act of Love and Sacrifice: Sister Shares Experience Taking Care of Brother with DMD
In recognition of National Family Caregiver Month, Tammi Moses shares her family’s experience providing care for her late brother Daniel, who lived with DMD.
Disappointing Results for Tirasemtiv in VITALITY-ALS Trial
Cytokinetics has reported negative results from its international phase 3 VITALITY-ALS trial to test the investigational drug tirasemtiv in people with ALS.
Voice Activation Technology Helps Young Man with DMD Live Unlimited
Bill Weis, a long time MDA supporter, recently met Robbie Ivey, a young man with DMD. Together, they used smart speakers and voice automation to outfit his bedroom and help this young man live unlimited.
FDA Grants Orphan Drug Designation to Jupiter Orphan Therapeutics’ Experimental Friedreich’s Ataxia Drug JOTROL
The investigational drug JOTROL under development by Jupiter Orphan Therapeutics to treat FA has received FDA Orphan Drug Designation.
Bringing Joy to Campers, One Accessible Fire Truck Ride at a Time
IAFF fire fighter goes all in and builds an accessible hook and ladder truck for MDA Campers.
Miss the Recent Caregiver Webinar? Here’s Your Chance to Catch Up
Did you miss MDA’s recent Caregiver Webinar in partnership with SYNERGY HomeCare? Find the webinar and highlights here:
Evenings of Discovery and Impact
The Muscular Dystrophy Association launched a new event series in 2017, MDA Discovery & Impact Events, to bring greater awareness to and educate families and supporters about the progress being made in the neuromuscular disease space.
Muscular Dystrophy Strikes Close to Home: An IAFF Fire Fighter Fills the Boot for His Wife
For IAFF member Ted Edwards, Fill The Boot is very personal: his wife Jamie lives with myotonic dystrophy.
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