Former MDA National Ambassador Abbey Umali shares big plans post grad
Recent high school graduate Abbey Umali, a former MDA National Ambassador who lives with CMT, shares her plans for the future.
81 search results for "CMT"
The Big Heart Hero
Stacy Coleman wrote “The Big Heart Hero,” a short children’s story, to inspire her two young sons Hayden and Mason, who live with Charcot-Marie-Tooth (CMT), and others to find strength in every day moments and to never give up on what you want to become. Stacy, who also lives with CMT, and her family are active in the MDA community in Texas.
5 Reasons You Should Join Team Momentum
MDA Team Momentum is recruiting participants! If you’re on the fence about running, check out what motivates these five Team Momentum athletes.
5 Reasons You Should Join MDA Muscle Walk
Learn why five MDA families are equally dedicated to Muscle Walk — and why you should also support this incredible cause.
Keeping Up the Momentum
For this latest round of awards, MDA reviewed 187 applications and had sufficient funds to approve funding for approximately 15 percent of them — 29 grants with a total funding commitment of more than $7 million.
Keeping Up the Momentum
Following the approval of three drugs in six months, new MDA grants push for more progress By Grace Pavlath, Ph.D., MDA Senior Vice President & Scientific Program Director What are the effects of steroids on muscle repair in patients with Duchenne muscular dystrophy (DMD)? How can gene therapy impact people with Charcot-Marie-Tooth disease (CMT)? Will . . .
Iowa State Goodwill Ambassador, Gianna, Shares a Powerful Message
Gianna Schwartz was born to write. Just 10 years old, the fifth-grader from Bettendorf, Iowa, has already won writing contests sponsored by PBS and participated in poetry slams. She’s even written a children’s book that was purchased at an auction by a Major League baseball player. Gianna — who is the Iowa State Goodwill Ambassador . . .
MDA Holiday Gift Guide
Few things are better than the perfect gift — except, perhaps, the gift that gives love to the recipient and to a whole community as well. This season, surprise your family with gifts that give to MDA families — and MDA research — too. Good Reads Stack your family bookshelf with must-reads that help explain . . .
Why I Walk: For Community, Camp and Cures
Editor’s note: The following is adapted from a letter Stephanie Hoover wrote to family and friends to ask them to support her in the Louisville Muscle Walk. We thought her characterization of the impact of her disease and her eloquent description of the community she has found within MDA were worth sharing. We hope you agree. . . .
Meet Brayden, MDA’s 2016 State Goodwill Ambassador from Kentucky
Brayden Hometown: Fairdale, KY Age: 8 Diagnosis: Charcot-Marie Tooth (CMT) Favorite School Subject/Activities: I enjoy Math, GymTyme Cheer, and being in the spotlight. Favorite People and/or Pets: I like Spiderman, Batman, The Flash, and The Arrow. Other people I really like are my mom, dad and brothers, Dylan and Nate. I have two dogs and two cats. Interests: I love . . .
