An expression of the live unlimited spirit, stories and voices of the MDA community
Here’s how I see it: If families are at the heart of everything MDA does, then volunteers are the lifeblood that energizes our every heartbeat. Bob Bennett and Dr. Chris Rosa exemplify not only the best of our volunteers, but also the best of people.
For Ava Illingsowrth there are no barriers. There are no obstacles. For her, challenges are just opportunities to defy limits. Ava is a runner with the MDA’s Team Momentum, MDA’s endurance training team that helps people train for half or full marathons while supporting kids and adults living with muscular dystrophy. Ava herself is one . . .
Encouraging results from an MDA-supported study, have revealed a potential new strategy to treat spinal muscular atrophy (SMA).
Researchers are looking for people with ALS to participate in a research study aimed at better understanding the specific form of ALS caused by a mutation in the gene for C9ORF72.
Ionis Pharmaceuticals provided an update on its recently-concluded phase 1-2 clinical trial of IONIS-DMPK-2.5Rx, an experimental compound for the treatment of type 1 myotonic dystrophy (DM1). Analysis showed mixed results from the trial.
Join us for a special webinar on January 19 (12 p.m. PST; 1 p.m. MST; 2 p.m. CST; 3 p.m. EST) that will explore how to find the right mobility equipment to meet your needs.
MDA is excited to announce that we are accepting applications for the inaugural National Community Advisory Committee, a group that will advise MDA on matters of importance to families living with neuromuscular diseases and help inform MDA’s efforts to support individuals to live unlimited.
Alexion Pharmaceuticals announced it has submitted a marketing application to the FDA for the investigational drug eculizumab (brand name Soliris).
When opportunity knocks, 15-year-old Justin answers. Born with CMD, Justin has traveled to China, been on a 500-mile bike ride across Iowa, and even modeled in a fashion show. How? Justin always says, ‘Yes.’ That’s how he lives unlimited.
Mindy Henderson, who has SMA, shares her story of love and loss with one of America’s most popular cosmetics.
Sign up for MDA news & updates.
