Today is World Duchenne Awareness Day 2017
Learn about our most recently awarded research grants and the DMD families they have the potential to impact.
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Fire Fighter Runs 30 Miles Between Stations to Raise Funds for MDA
Dan Kelleher, an IAFF fire fighter went above & beyond (literally 30 miles beyond) to raise funds for MDA Team Momentum.
Mason’s Movers set to take on Marine Corps Marathon
Alicia Miro, whose son lives with MD, shares why she runs the Marine Corps Marathon with MDA Team Momentum and why you should too.
For the Love of Devin: Josh Argall Races to Find a Cure for His Son — and All MDA Families
This Father’s Day, we’re recognizing an extraordinary MDA dad. Josh Argall was initially devastated by his son Devin’s DMD diagnosis, but once the shock wore off, he resolved to do everything he could for his son and all MDA families. “I can’t discover the new medicine, I can’t provide healthcare, but I can contribute to the mission in my own way, so that’s what I decided to do…There isn’t anything I wouldn’t do for MDA. Knowing how these parents feel and these children feel, that’s what keeps me going.”
Community Rallies to Help MDA Summer Camp Give Kids the Best Week of the Year
When an MDA Summer Camp needed help, the local community stepped up to the plate in a big way.
From Summer Camp to Chicago Marathon, Robb Valentyn Goes All in for MDA
From MDA Summer Camp to MDA Team Momentum, Robb Valentyn has been volunteering with MDA for ten plus years and doesn’t plan to stop anytime soon.
New Research, Supported by MDA and the CMT Association, Examines Gene Therapy in CMT
New research, supported by MDA and the CMT Association, examines gene therapy in CMT.
Oh, Hello 2017 — I’m Ready for You
When I was asked to continue in my role as National Ambassador for MDA in 2017, I had to think about it for about a nanosecond before I gave my answer. Yes, of course! So it’s official: I’ve re-upped for another tour. 2016 will be a hard act to follow, but now that I’m a registered frequent flyer and have a year of ambassadorship under my belt, I can’t wait to try to top it. In fact, I’ve taken the liberty of compiling a list of experiences I’m looking forward to in 2017. Join me, won’t you?
A Year of Progress and Promise
MDA began 2016 with an ambitious blueprint, full of changes and improvements — all designed to help us fulfill our mission promise to free individuals and families from the harmful effects of muscular dystrophy and related life-threatening diseases. Now, we reflect on our accomplishments and give thanks to our supporters.
“Joe Akmakjian: National Ambassador” Season One Recap
Joe Akmakjian had a whirl wind year serving as MDA’s first adult National Goodwill Ambassador! Check out some of his highlights from 2016.
