Learn about our most recently awarded research grants and the DMD families they have the potential to impact.
Dan Kelleher, an IAFF fire fighter went above & beyond (literally 30 miles beyond) to raise funds for MDA Team Momentum.
Alicia Miro, whose son lives with MD, shares why she runs the Marine Corps Marathon with MDA Team Momentum and why you should too.
This Father’s Day, we’re recognizing an extraordinary MDA dad. Josh Argall was initially devastated by his son Devin’s DMD diagnosis, but once the shock wore off, he resolved to do everything he could for his son and all MDA families. “I can’t discover the new medicine, I can’t provide healthcare, but I can contribute to the mission in my own way, so that’s what I decided to do…There isn’t anything I wouldn’t do for MDA. Knowing how these parents feel and these children feel, that’s what keeps me going.”
When an MDA Summer Camp needed help, the local community stepped up to the plate in a big way.
From MDA Summer Camp to MDA Team Momentum, Robb Valentyn has been volunteering with MDA for ten plus years and doesn’t plan to stop anytime soon.
New research, supported by MDA and the CMT Association, examines gene therapy in CMT.
When I was asked to continue in my role as National Ambassador for MDA in 2017, I had to think about it for about a nanosecond before I gave my answer. Yes, of course! So it’s official: I’ve re-upped for another tour. 2016 will be a hard act to follow, but now that I’m a registered frequent flyer and have a year of ambassadorship under my belt, I can’t wait to try to top it. In fact, I’ve taken the liberty of compiling a list of experiences I’m looking forward to in 2017. Join me, won’t you?
MDA began 2016 with an ambitious blueprint, full of changes and improvements — all designed to help us fulfill our mission promise to free individuals and families from the harmful effects of muscular dystrophy and related life-threatening diseases. Now, we reflect on our accomplishments and give thanks to our supporters.
Joe Akmakjian had a whirl wind year serving as MDA’s first adult National Goodwill Ambassador! Check out some of his highlights from 2016.